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  1. The overarching aim of this article is to scrutinize how severity can work as a qualifier for the moral impetus of malady. While there is agreement that malady is of negative value, there is disagreement about pr...

    Authors: Carl Tollef Solberg, Mathias Barra, Lars Sandman and Bjørn Hoffmann
    Citation: BMC Medical Ethics 2023 24:25
  2. The worldwide increase in older persons demands technological solutions to combat the shortage of caregiving and to enable aging in place. Smart home health technologies (SHHTs) are promoted and implemented as...

    Authors: Nadine Andrea Felber, Yi Jiao (Angelina) Tian, Félix Pageau, Bernice Simone Elger and Tenzin Wangmo
    Citation: BMC Medical Ethics 2023 24:24
  3. Research is crucial to improve treatment, survival and quality of life for children with cancer. However, recruitment of children for research raises ethical challenges. The aim of this study was to explore an...

    Authors: Kajsa Norbäck, Anna T. Höglund, Tove Godskesen and Sara Frygner-Holm
    Citation: BMC Medical Ethics 2023 24:23
  4. Voluntary assisted dying became lawful in Victoria, the first Australian state to permit this practice, in 2019 via the Voluntary Assisted Dying Act 2017 (Vic). While conscientious objection by individual health ...

    Authors: Ben P. White, Ruthie Jeanneret, Eliana Close and Lindy Willmott
    Citation: BMC Medical Ethics 2023 24:22
  5. Decisions about appropriate treatment at the end of life are common in modern healthcare. Non-treatment decisions (NTDs), comprising both withdrawal and withholding of (potentially) life-prolonging treatment are ...

    Authors: David Wikstøl, Morten Andreas Horn, Reidar Pedersen and Morten Magelssen
    Citation: BMC Medical Ethics 2023 24:20
  6. Despite consensus about the importance of implementing shared decision-making (SDM) in clinical practice, this ideal is inconsistently enacted today. Evidence shows that SDM practices differ in the degree of i...

    Authors: Vinurshia Sellaiah, Federica Merlo, Roberto Malacrida, Emiliano Albanese and Marta Fadda
    Citation: BMC Medical Ethics 2023 24:19
  7. This study aimed to identify the healthcare providers’ experience and perspectives toward end-of-life care decisions focusing on end-of-life discussion and physician’s order of life-sustaining treatment docume...

    Authors: Hyeon-Su Im, Insook Lee, Shinmi Kim, Jong Soo Lee, Ju-Hee Kim, Jae Young Moon, Byung Kyu Park, Kyung Hee Lee, Myung Ah Lee, Sanghoon Han, Yoonki Hong, Hyeyeoung Kim, Jaekyung Cheon and Su-Jin Koh
    Citation: BMC Medical Ethics 2023 24:18
  8. Given that biases can distort bioethics work, it has received surprisingly little and fragmented attention compared to in other fields of research. This article provides an overview of potentially relevant bia...

    Authors: Bjørn Hofmann
    Citation: BMC Medical Ethics 2023 24:17
  9. Emergency separation of conjoined twins is performed when one twin is already dead or dying and threatens the survival of the other. The particular decision to perform an emergency separation of conjoined twin...

    Authors: Andi Ade Wijaya Ramlan, Raihanita Zahra, Kshetra Rinaldhy, Christopher Kapuangan, Rahendra, Komang Ayu Ferdiana and Ahmad Yani
    Citation: BMC Medical Ethics 2023 24:16
  10. We present the reflections of three clinical practitioners on ethical considerations when caring for individuals experiencing incarceration needing in-patient hospital services. We examine the challenges and c...

    Authors: Markus Eichelberger, Maria M. Wertli and Nguyen Toan Tran
    Citation: BMC Medical Ethics 2023 24:13
  11. Although patient advocates have developed templates for standard consent forms, evaluating patient preferences for first in human (FIH) and window of opportunity (Window) trial consent forms is critical due to...

    Authors: Anna M. Avinger, Hannah Claire Sibold, Gavin Campbell, Eli Abernethy, John Bourgeois, Tekiah McClary, Shannon Blee, Margie Dixon, R. Donald Harvey and Rebecca D. Pentz
    Citation: BMC Medical Ethics 2023 24:12
  12. The COVID-19 pandemic presents significant challenges to research ethics committees (RECs) in balancing urgency of review of COVID-19 research with careful consideration of risks and benefits. In the African c...

    Authors: Theresa Burgess, Stuart Rennie and Keymanthri Moodley
    Citation: BMC Medical Ethics 2023 24:11
  13. We assessed potential consent bias in a cohort of > 40,000 adult patients asked by mail after hospitalization to consent to the use of past, present and future clinical and biological data in an ongoing ‘gener...

    Authors: Cristina Bosmani, Sonia Carboni, Caroline Samer, Christian Lovis, Thomas Perneger, Angela Huttner and Bernard Hirschel
    Citation: BMC Medical Ethics 2023 24:10
  14. Medical researchers in resource-constrained settings must make difficult moral decisions about the provision of ancillary care to participants where additional healthcare needs fall outside the scope of the re...

    Authors: Blessings M. Kapumba, Deborah Nyirenda, Nicola Desmond and Janet Seeley
    Citation: BMC Medical Ethics 2023 24:8
  15. Use of modified texture diets—thickening of liquids and modifying the texture of foods—in the hope of preventing aspiration, pneumonia and choking, has become central to the current management of dysphagia. Th...

    Authors: Shaun T. O’Keeffe, Paula Leslie, Tracy Lazenby-Paterson, Arlene McCurtin, Lindsey Collins, Aoife Murray, Alison Smith and Siofra Mulkerrin
    Citation: BMC Medical Ethics 2023 24:7
  16. There is now rising consensus that community engagement is ethically and scientifically essential for all types of health research. Yet debate continues about the moral aims, methods and appropriate timing in ...

    Authors: Josephine Borthwick, Natalia Evertsz and Bridget Pratt
    Citation: BMC Medical Ethics 2023 24:6
  17. The informed consent process in clinical trials has been extensively studied to inform the development processes which protect research participants and encourage their autonomy. However, ensuring a meaningful...

    Authors: Yen Hong Thi Nguyen, Thuan Trong Dang, Ngoc Bao Hong Lam, Phuong Thanh Le, Phu Hoan Nguyen, Susan Bull, Evelyne Kestelyn and Jennifer Ilo Van Nuil
    Citation: BMC Medical Ethics 2023 24:3
  18. Empirical research can become relevant for bioethics in at least two ways. First, by informing the development or refinement of ethical recommendations. Second, by evaluating how ethical recommendations are tr...

    Authors: Johannes Schwietering, Holger Langhof and Daniel Strech
    Citation: BMC Medical Ethics 2023 24:2
  19. Vascular surgery offers a range of treatments to relieve pain and ulcerations, and to prevent sudden death by rupture of blood vessels. The surgical procedures involve risk of injury and harm, which increases ...

    Authors: Kaja Heidenreich, Mia Svantesson, Marit Karlsson and Anders Bremer
    Citation: BMC Medical Ethics 2023 24:1
  20. This is the first qualitative study to investigate how researchers, who do empirical work in bioethics, relate to objectives of empirical research in bioethics (ERiB). We explore reasons that make some objecti...

    Authors: Emilian Mihailov, Veerle Provoost and Tenzin Wangmo
    Citation: BMC Medical Ethics 2022 23:140
  21. In gender-affirming medical care (GAMC), ethical challenges in decision-making are ubiquitous. These challenges are becoming more pressing due to exponentially increasing referrals, politico-legal contestation...

    Authors: Karl Gerritse, Casper Martens, Marijke A. Bremmer, Baudewijntje P. C. Kreukels, Fijgje de Boer and Bert C. Molewijk
    Citation: BMC Medical Ethics 2022 23:139
  22. The use of human embryonic stem cells (ES cells) for the development of medical therapies is surrounded with moral concerns. The aim of this study was to assess the public’s attitudes toward the use of ES cell...

    Authors: Åsa Grauman, Mats Hansson, Dag Nyholm, Elena Jiltsova, Håkan Widner, Trinette van Vliet and Jennifer Drevin
    Citation: BMC Medical Ethics 2022 23:138
  23. In recent years, some researchers have engaged in scientific misconduct such as fabrication, falsification, and plagiarism to achieve higher research performance. Considering their detrimental effects on indiv...

    Authors: Na Zhang, Mingxuan Guo, Chunhua Jin and Zhen Xu
    Citation: BMC Medical Ethics 2022 23:137
  24. The aim of UK-REACH (“The United Kingdom Research study into Ethnicity And COVID-19 outcomes in Healthcare workers”) is to understand if, how, and why healthcare workers (HCWs) in the United Kingdom (UK) from ...

    Authors: Edward S. Dove, Ruby Reed-Berendt and Manish Pareek
    Citation: BMC Medical Ethics 2022 23:136
  25. For over 35 years, Africa has continued to host HIV vaccine trials geared towards overturning the HIV/AIDs pandemic in the continent. However, the methods of sharing the vaccines, when available remain less ce...

    Authors: Godwin Pancras, Mangi Ezekiel, David Nderitu, Erasto Mbugi and Jon F. Merz
    Citation: BMC Medical Ethics 2022 23:135
  26. This study aims to quantitatively and qualitatively evaluate the activities of a Bioethics Unit (BU) 5 years since its implementation (2016–2020). The BU is a research unit providing empirical research on ethi...

    Authors: Ludovica De Panfilis, Morten Magelssen, Massimo Costantini, Luca Ghirotto, Giovanna Artioli, Elena Turola and Marta Perin
    Citation: BMC Medical Ethics 2022 23:133
  27. Everybody has the right to decide whether to receive specific medical treatment or not and to provide their free, prior and informed consent to do so. As dementia progresses, people with Alzheimer’s dementia (...

    Authors: Stefanie Baisch, Christina Abele, Anna Theile-Schürholz, Irene Schmidtmann, Frank Oswald, Tarik Karakaya, Tanja Müller, Janina Florack, Daniel Garmann, Jonas Karneboge, Gregor Lindl, Nathalie Pfeiffer, Aoife Poth, Bogdan Alin Caba, Martin Grond, Ingmar Hornke…
    Citation: BMC Medical Ethics 2022 23:132
  28. The enrolment of children and adolescents in health research requires that attention to be paid to specific assent and consent requirements such as the age range for seeking assent; conditions for parental con...

    Authors: Nchangwi Syntia Munung, Victoria Nembaware, Lawrence Osei-Tutu, Marsha Treadwell, Okocha Emmanuel Chide, Daima Bukini, Hilda Tutuba and Ambroise Wonkam
    Citation: BMC Medical Ethics 2022 23:130
  29. Social networking sites (SNSs) have penetrated all aspects of health care professionals’ (HCPs’) professional and private lives. A new term, e-professionalism, has emerged, which describes the linking of tradi...

    Authors: J. Viskić, M. Marelić, L. Machala Poplašen and T. Vukušić Rukavina
    Citation: BMC Medical Ethics 2022 23:129
  30. Obtaining consent has become a standard way of respecting the patient’s rights and autonomy in clinical research. Ethical guidelines recommend that the child’s parent/s or authorised legal guardian provides in...

    Authors: Mtisunge Joshua Gondwe, Neema Mtunthama Toto, Charity Gunda, Markus Gmeiner, Ian J. C. MacCormick, David Lalloo, Michael Parker and Nicola Desmond
    Citation: BMC Medical Ethics 2022 23:125
  31. Parkinson’s disease (PD) has been considered to be one of the most promising target diseases for forthcoming cell-based therapy. The aim of this study is to explore the views of individuals with cryopreserved ...

    Authors: Karin Schölin Bywall, Jan Holte, Thomas Brodin, Mats Hansson and Jennifer Drevin
    Citation: BMC Medical Ethics 2022 23:124
  32. The ageing of the population and the increased number of chronic diseases are associated with an increased frequency of end of life care in hospital settings. Residents rotating in hospital wards play a major ...

    Authors: Victoire Haardt, Amélie Cambriel, Sidonie Hubert, Marc Tran, Cédric Bruel and Francois Philippart
    Citation: BMC Medical Ethics 2022 23:123
  33. Population-based genomics studies have proven successful in identifying genetic variants associated with diseases. High-quality biospecimens linked with informative health data from diverse segments of the pop...

    Authors: Mamoun Ahram, Fatma Abdelgawad, Samar Abd ElHafeez, Ahmed Samir Abdelhafiz, Maha Emad Ibrahim, Alya Elgamri, Zeinab Mohammed, Karima El-Rhazi, Eman Elsebaie, Ehsan Gamel, Manal Shahouri, Nada Taha Mostafa, Latifa Adarmouch and Henry Silverman
    Citation: BMC Medical Ethics 2022 23:122
  34. Increasingly, hospitals and research institutes are developing technical solutions for sharing patient data in a privacy preserving manner. Two of these technical solutions are homomorphic encryption and distr...

    Authors: James Scheibner, Marcello Ienca and Effy Vayena
    Citation: BMC Medical Ethics 2022 23:121
  35. Research involving human participants requires their consent, and it is common practice to capture consent information on paper and store those hard copies, presenting issues such as long-term storage requirem...

    Authors: Tsaone Tamuhla, Nicki Tiffin and Taryn Allie
    Citation: BMC Medical Ethics 2022 23:119
  36. Ethics in biomedical research is still a fairly new concept in Africa. This work aims to assess the knowledge, attitude and experiences of Beninese researchers with regard to the national ethical regulatory fr...

    Authors: Flore Gangbo, Grâce Quenum, Fernand Aimé Guédou and Martial Boko
    Citation: BMC Medical Ethics 2022 23:116

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