Table 5 Medical students’ opinions on control over data sharing
Definitely not n (%) | Rather not n (%) | I do not know n (%) | Rather yes n (%) | Definitely yes n (%) | Median (IQR) | P for groups differences | |
|---|---|---|---|---|---|---|---|
What information would you like to receive before submitting samples to the biobank? | |||||||
Type and purpose of the research | |||||||
1. Medical students (MS) | 1 (0.2) | 1 (0.2) | 0 (0) | 27 (6.5) | 387 (93.1) | 5 (5–5) | ns |
2. Nursing students (NS) | 0 (0) | 1 (0.4) | 1 (0.4) | 7 (3) | 229 (96.2) | 5 (5–5) | |
3. Pharmacy students (PS) | 0 (0) | 0 (0) | 1 (0.5) | 8 (3.8) | 202 (95.7) | 5 (5–5) | |
Who conducts research and where | |||||||
MS | 0 (0) | 18 (4.3) | 5 (1.2) | 87 (20.9) | 306(73.6) | 5 (4–5) | ns |
NS | 0 (0) | 5 (2.1) | 4 (1.7) | 55 (23.1) | 174(73.1) | 5 (4–5) | |
PS | 2 (1) | 12 (5.7) | 3 (1.4) | 52 (24.6) | 142(67.3) | 5 (4–5) | |
Who owns the biobank | |||||||
MS | 3 (0.7) | 37 (8.9) | 20 (4.8) | 120 (28.8) | 236 (56.7) | 5 (4–5) | 1 vs. 2 p < 0.05 |
NS | 3 (1.3) | 28 (11.8) | 16 (6.7) | 80 (33.6) | 111 (46.6) | 4 (4–5) | 1 vs. 3 p < 0.0001 |
PS | 3 (1.4) | 43 (20.4) | 12 (5.7) | 64 (30.3) | 89 (42.2) | 4 (3–5) | |
How long samples will be stored | |||||||
MS | 6 (1.4) | 25 (6) | 14 (3.4) | 104 (25) | 267 (64.2) | 5 (4–5) | 1 vs. 3 p < 0.01 |
NS | 3 (1.3) | 18 (7.6) | 7 (2.9) | 55 (23.1) | 155 (65.1) | 5 (4–5) | 2 vs. 3 p < 0.01 |
PS | 5 (2.4) | 22 (10.4) | 7 (3.3) | 70 (33.2) | 107 (50.7) | 5 (4–5) | |
Where the samples will be stored | |||||||
MS | 3 (0.7) | 51 (12.3) | 16 (3.9) | 120 (28.8) | 226 (54.3) | 5 (4–5) | 2 vs. 3 p < 0.05 |
NS | 3 (1.3) | 20 (8.4) | 11 (4.6) | 71 (29.8) | 133 (55.9) | 5 (4–5) | |
PS | 7 (3.3) | 26 (12.3) | 8(3.8) | 76 (36) | 94 (44.6) | 4 (4–5) | |
Who will have access to the results | |||||||
MS | 1 (0.2) | 9 (2.2) | 0 (0) | 67 (16.1) | 339 (81.5) | 5 (5–5) | ns |
NS | 0 (0) | 3 (1.3) | 1 (0.4) | 34 (14.3) | 200 (84) | 5 (5–5) | |
PS | 1 (0.5) | 8 (3.8) | 0 (0) | 42 (19.9) | 160 (75.8) | 5 (5–5) | |
Conditions for withdrawing samples and data from the biobank | |||||||
MS | 0 (0) | 11 (2.6) | 8 (1.9) | 69 (16.6) | 328 (78.9) | 5 (5–5) | 2 vs. 3 p < 0.05 |
NS | 1 (0.4) | 5 (2.1) | 3 (1.3) | 32 (13.4) | 197 (82.8) | 5 (5–5) | |
PS | 3 (1.4) | 5 (2.4) | 5 (2.4) | 44 (20.8) | 154 (73) | 5 (4–5) | |
Penalties for investigators who commit abuses | |||||||
MS | 4 (0.9) | 24 (5.8) | 13 (3.1) | 101 (24.3) | 274 (65.9) | 5 (4–5) | ns |
NS | 0 (0) | 5 (2.1) | 8 (3.4) | 53 (22.3) | 172 (72.3) | 5 (4–5) | |
PS | 1 (0.5) | 11 (5.2) | 8 (3.8) | 35 (16.6) | 156 (73.9) | 5 (4–5) | |