1. Medical students n (%) | 2. Nursing students n (%) | 3. Pharmacy students n (%) | P for groups differences | |
---|---|---|---|---|
What would be your primary motivation for donating your biological material to a biobank? | ||||
To benefit society and future generations | 28 (6.9) | 12 (5.1) | 12 (5.8) | ns |
To advance science, help in generating new knowledge and develop therapies for various diseases | 301 (74.1) | 163 (70) | 149 (72) | |
To benefit my family, relatives and myself | 32 (7.9) | 21 (9) | 18 (8.7) | |
To receive medical treatment/service | 2 (0.5) | 2 (0.9) | 0 (0) | |
To know my health status | 38 (9.4) | 32 (13.7) | 26 (12.6) | |
To receive financial gratification | 5 (1.2) | 3 (1.3) | 2 (0.9) | |
What type of consent would you prefer when donating your samples to a biobank? | ||||
Blanket (open-ended permission without any limitations and the need to renewed consent) | 77 (18.5) | 40 (16.8) | 27 (12.8) | ns |
Specific consent (for one experiment with well-defined aim / before every research that involves my samples) | 206 (49.5) | 128 (53.8) | 115 (54.5) | |
Broad consent (general consent for a broad range of future studies but subjected to specified limitations and restrictions stated in the consent form) | 40 (9.6) | 25 (10.5) | 21 (10) | |
Tiered consent (individually selected categories of research or research uses e.g. specific diseases, i.e. cancer or neurological diseases, or research conducted only by specified institutions, i.e. publicly-funded but not private) | 35 (8.4) | 17 (7.1) | 26 (12.3) | |
Consent delegated to bioethical committee | 50 (12) | 23 (9.7) | 18 (8.5) | |
I don’t know | 8 (2) | 5 (2.1) | 4 (1.9) | |
Samples taken from donors for research purposes should be | ||||
Pseudonymized (reversibly coding, i.e. in case of detecting a disease) | 365 (87.7) | 215 (90.3) | 197 (93.4) | ns |
Anonymized (irreversibly coded, so that donor data cannot be determined) | 36 (8.7) | 17 (7.1) | 11 (5.2) | |
I don’t know | 15 (3.6) | 6 (2.5) | 3 (1.4) | |
While donation the samples the donors should rather | ||||
Specify the types of research for which their specimens may be used | 168 (40.4) | 123 (51.7) | 84 (39.8) | 1 vs. 2 p < 0.01 |
Specify the types of research for which their specimens may not be used | 209 (50.2) | 90 (37.8) | 95 (45) | 2 vs. 3 p < 0.05 |
I don’t know | 39 (9.4) | 25 (10.5) | 32 (15.2) | |
When donors want to withdraw from research their samples should be | ||||
Anonymized (irreversible coded) but available for further research | 87 (20.9) | 43 (18.1) | 51 (24.2) | 1 vs. 3 p < 0.01 |
Destroyed | 237 (57) | 131 (55) | 93 (44.1) | |
Prohibited from use in further research | 72 (17.3) | 53 (22.3) | 57 (27) | |
I don’t know | 20 (4.8) | 11 (4.6) | 10 (4.7) |