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Table 3 The nine ethical issues the CARE intervention address

From: Developing the CARE intervention to enhance ethical self-efficacy in dementia care through the use of literary texts

 

Target Groups

People living with dementia living at home and family carers

Family and professional carers

Professional carers

Ethical

issues

How to engage with a person who is unwilling to recognize that he or she has dementia

How to coordinate care responsibilities between family and professional carers

How to prioritize the needs among residents at nursing homes

This may involve a conflict between respecting the self-determination of the person with dementia and promoting her best interest

This may involve a conflict between respecting the autonomy of the family carer and the autonomy of the professional carer

This may involve a conflict between promoting the best interest of the person with dementia and allocating resources justly

How to communicate with surroundings, e.g. friends and relatives, about having dementia if the person with dementia fears stigmatization

How to respect the privacy of people living with dementia when family and professional carers communicate

How to balance the need to sometimes use manipulation in the care of a person with dementia with respecting his or her dignity

This may involve a conflict between respecting the self-determination of the person with dementia and promoting her best interest

This may involve a conflict between respecting the self-determination of the person with dementia and promoting her best interest

This may involve a conflict between respecting the self-determination of the person with dementia and promoting her best interest

How to talk about future ethical issues, like future power of attorney, transition to nursing home etc., likely to come

How for family and professional carers to balance the needs of the person with dementia with the needs of other residents at the nursing home

How to respect the privacy of residents at nursing homes while at the same time providing optimal care

This may involve a conflict between the principles of not doing harm (non-maleficence) and promoting the best interest of the person with dementia

This may involve a conflict between promoting the best interest of the person with dementia and allocating resources justly

This may involve a conflict between respecting the self-determination of the person with dementia and promoting her best interest.