Table 1 Identified themes and subthemes from the interviews
Themes | Subthemes |
|---|---|
Goals of biobanks | Personalized medicine |
Knowledge of susceptibility to diseases | |
Investigation of genetic diseases | |
Challenges to the establishment of biobanks | Lack of experience and training |
Limited start-up funding | |
Lack of awareness and the novelty of the concept of biobanking | |
Resistance from stakeholders | |
Professional colleagues | |
Patients and public | |
Sustainability | Definition of sustainability |
Funding from different sources | |
Well thought-out business plans | |
Sample utilization and collection of fees | |
Collaborations with researchers | |
Partnerships with the private sector | |
International networking | |
Ethical issues | Types of informed consent |
Privacy and confidentiality | |
Data sharing—Material Transfer Agreements | |
Return of Results | |
Governance | Definition of Governance |
Types of Committees | |
Sample Access Policies | |
National Regulations | |
Community engagement trust | Activities to involve the community |
Concerns with public lack of trust | |
Methods to enhance trust | |
Transparency |