Skip to main content

Table 1 Codes used to perform the content analysis

From: Facing new challenges to informed consent processes in the context of translational research: the case in CARPEM consortium

Code Description
 Consent form Consent forms determined the scope of their content and the choices someone can make when s/he signed it
 New consent Any information about renewing the initial consent
 Right to withdraw Any information about the right to withdraw the consent
 Context of biological sampling Were Biological samples collected during healthcare or during research?
 Storage place Any information about the place where biological samples were stored
 Place of use Any information about the place where biological samples would be used
 Period of storage Any information about how long biological would be used for scientific purposes
 Purpose of use Any information about scientific goal of using biological samples
 Secondary use of biological samples Any information about future use of biological samples after the first research
 Transfer of biological samples Any information about future transfer of biological samples, to private or public organization and/or to international structure
 Right to ask for sample’s destruction or to oppose their reuse Any information about the right to ask for sample’s destruction or to oppose their reuse for scientific purposes
 Type of data Any information about a type of collected data: biological, demographical, gender, genetic, medical record, lifestyle
 Privacy Any information about how privacy would be preserved: is privacy protection mentioned and is it explained?
 Personal rights about data Any information about personal rights on personal data: right to access and to change data, right to oppose to their use
 Secondary use of personal data Any information about potential secondary uses of data
\