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Table 2 Studies on patients with ADs by pathology

From: Why have Advance Directives failed in Spain?

Pathology

Year

Author and type of study

Results

HIV

2006

Miró, Gloria

Observational

222 participants. 31.3% were familiar with ADs. A higher level of knowledge was found among women, individuals with a higher level of education and those who most wanted to participate in decision-making. 61.3% were of the opinion that they should be the person to decide about their own medical care. 57.2% would like to have recorded those decisions, 92.3% to designate a representative, and 70.2% to name a relative to make decisions for them

Heart failure

2010

Antolín, Albert

Observational

309 participants. 13.3% were familiar with ADs and what they consisted of. Of these, up to 4.9% got this information from their doctor, 28.8% were in favor of completing ADs in the future, and 81.9% would designate a relative to be their representative. Being objectively well-informed was related with having been admitted to the ICU, having participated in decision-making and being willing to prepare ADs

Kidney failure in dialysis

2009

Palero, Claudia

Observational

95 participants. 63.2% are not familiar with ADs, and 2.2% had them prepared. 5.7% have full confidence in the document, and 68.5% have full confidence in their family and doctors. They preferred human relations over documents (planning and better flowing communication). Patients trust professionals, but communication about how to face death was made difficult by taboos regarding the issue

2011

Sánchez, José A

Observational

154 participants. 7.9% had their ADs prepared, and 6.6% had designated a legal representative. 65% rejected mechanical ventilation and nasogastric tube feeding. Many patients believed that ADs should be prepared before starting dialysis treatment, though most of them pointed out that this should only be offered to those who request it. More than a half expressed that they hoped to prepare ADs

2017

Rodríguez, Ángel

Intervention study

210 participants. 41.3% stated that they wanted to limit therapeutic efforts in the severe situations found with ADs; 6.1% said they wished to continue dialysis under all circumstances; 14.7% had expressed their wishes to their representative, but without written confirmation, and 37.9% refused to complete ADs