Qualitative data | ||
Data source | Main topics | |
1 | Three focus group interviews with key persons, in addition to audio recordings and notes from all dialogue seminars | Key persons’ experiences with work in the CECs, experienced challenges, and perceived impact of the training received |
2 | One focus group interview with each of the participating CECs in full, towards the end of the study period | Experiences and challenges with work in the CEC, including case deliberation. Perceived impact on services, municipality and CEC members |
3 | Individual interviews with the head of each municipality’s health and care sector | Perceived impact on services and municipality. Municipal support for the CEC |
4 | Individual interviews (up to 20) with professionals who have been involved in a case discussed in the CEC | Practical consequences of CEC involvement. Experiences with taking part in CEC deliberations |
5 | Individual interviews (up to 15) with patients and next of kin who have been involved in a CEC deliberation | Practical consequences of CEC involvement. Experiences with taking part in CEC deliberations |
6 | CEC deliberation reports (anonymized) | Nature of ethical issues. Characteristics of the CECs’ ethical reasoning |
7 | Observation of CEC deliberations (1-2 per CEC) | Deliberation process. Involvement of stakeholders |
Quantitative data | ||
Data source | Main topics | |
8 | CECs’ yearly reports | CEC activities such as seminars, other outreach, number of attendees, services involved. CEC members |
9 | CEC deliberation reports (anonymized) and committee’s self-evaluation form for each case | Quantitative data about CEC cases |