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Table 2 Data sources in the project and the main topics they address

From: Implementing clinical ethics committees as a complex intervention: presentation of a feasibility study in community care

Qualitative data

 

Data source

Main topics

1

Three focus group interviews with key persons, in addition to audio recordings and notes from all dialogue seminars

Key persons’ experiences with work in the CECs, experienced challenges, and perceived impact of the training received

2

One focus group interview with each of the participating CECs in full, towards the end of the study period

Experiences and challenges with work in the CEC, including case deliberation. Perceived impact on services, municipality and CEC members

3

Individual interviews with the head of each municipality’s health and care sector

Perceived impact on services and municipality. Municipal support for the CEC

4

Individual interviews (up to 20) with professionals who have been involved in a case discussed in the CEC

Practical consequences of CEC involvement. Experiences with taking part in CEC deliberations

5

Individual interviews (up to 15) with patients and next of kin who have been involved in a CEC deliberation

Practical consequences of CEC involvement. Experiences with taking part in CEC deliberations

6

CEC deliberation reports (anonymized)

Nature of ethical issues. Characteristics of the CECs’ ethical reasoning

7

Observation of CEC deliberations (1-2 per CEC)

Deliberation process. Involvement of stakeholders

Quantitative data

 

Data source

Main topics

8

CECs’ yearly reports

CEC activities such as seminars, other outreach, number of attendees, services involved. CEC members

9

CEC deliberation reports (anonymized) and committee’s self-evaluation form for each case

Quantitative data about CEC cases