Table 2 Neurologists’ perceptions about recontacting patients to inform about newly acquired genetic information
Should neurologists who use WGS have a responsibility to recontact and inform their patients of clinically significant newly discovered mutations that are linked to the neurological condition | |
|---|---|
a. Yes (n = 118/158) | 74.7 |
b. No (n = 10/158) | 6.3 |
c. I don’t know (n = 30/158) | 19 |
If yes for how long? | |
a. as long as they are following the patient (n = 64/116) | 55.2 |
b. for an indefinite amount of time (n = 32/116) | 27.6 |
c. for a limited period of time (n = 5/116) | 4.3 |
d. I don’t know (n = 15/116) | 12.9 |
Do you think that neurologists also have a responsibility to recontact and inform patients of clinically significant, newly discovered mutations that were not linked to their neurological condition | |
a. Yes (n = 61/114) | 53.5 |
b. No (n = 30/114) | 26.3 |
c. I don’t know (n = 23/114) | 20.2 |