Table 2 Themes, related to family and professionals and matching codes and categories
Vision on VS/UWS | Feelings/attitude | ||
o Vision family | • Vision family on consciousness - Expectations and hope for future • Disagreement / dispute within family • Inner contradiction/ paradox family | o Emotions in family | • Acceptance/ gratitude • Trust- distrust • Anger/ anxiety/ tension • Negativity • Letting go • Powerlessness • Guild • Concern • Stand up for / Sacrifice |
o Vision professionals | • Vision physicians • Opinion paramedics on experience • Vision nurses - Interpretation reactions of patient • Differences in opinion between physicians and in multidisciplinary team - Futile medical treatment | o Feelings and attitude professionals | • Distrusted • Anxiety/ fear of the family • Burnout - Feeling continuously checked - Never being able to do right • Change of board/ profession • Compassion with patient - Compassion with family • Inner contradiction/ paradox professional |
Treatment and care plan | Communication | ||
o Professional input | • Medical treatment plan - End of life decisions • Nursing treatment plan | o Communication | • Between professional and family • Between nurses and patient • Between professionals |
o Wishes family for treatment plan | • Treatment - Everything possible is done • Advance directive family • Inner contradiction/ paradox family | o Making sense and meaning | • Family • Nursing staff |
o Actual dealing with treatment plan | • Ignoring agreements • Following agreements • Consultation • Lack of clarity - Crisis situations | ||
Impact on relationships | Organizational aspects | ||
o Family-family o Family-patient | • Disagreement / dispute within family • Impact for family • Involvement, family participation • Conflict - Still the same person as before the accident | • Management • Support • Educational program | |
o Family-professionals | • Involvement, family participation - Frequent personnel change • Professional support • Conflict | ||
o Professionals-professionals | • Tension in multidisciplinary team • Frequent personnel change • Support of professional |