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Table 6 Participant attitudes to receiving information regarding opportunities to participate in medical research and participant data-sharing (n = 40)

From: Using digital technologies to engage with medical research: views of myotonic dystrophy patients in Japan

  Number Percent
Would you like to be informed about opportunities to participate in research via email or our website?
Yes 27 68
No 2 5
I don’t know 8 20
Would you like to be informed every time your registry data is shared with other researchers or pharmaceutical companies?
I would like to be informed on every occasion 17 43
I would like to be informed at regular intervals 14 35
There is no need to inform me 5 13
I don’t know 2 5