Table 6 Participant attitudes to receiving information regarding opportunities to participate in medical research and participant data-sharing (n = 40)
Number | Percent | |
|---|---|---|
Would you like to be informed about opportunities to participate in research via email or our website? | ||
Yes | 27 | 68 |
No | 2 | 5 |
I don’t know | 8 | 20 |
Would you like to be informed every time your registry data is shared with other researchers or pharmaceutical companies? | ||
I would like to be informed on every occasion | 17 | 43 |
I would like to be informed at regular intervals | 14 | 35 |
There is no need to inform me | 5 | 13 |
I don’t know | 2 | 5 |