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Table 3 The topics that participants would like to discuss with doctors and researchers, the amount participants currently discuss and overall satisfaction with communication (n = 40)

From: Using digital technologies to engage with medical research: views of myotonic dystrophy patients in Japan

  Discuss information Communication with doctor
All or some Little or none p-value Satisfied Dissatisfied p-value
n (%) n (%) n (%) n (%)
Important topics
Physical symptoms 15 (60) 10 (40) 0.007 15 (60) 10 (40) 0.039
Mental health 5 (36) 9 (64)   7 (47) 8 (53)  
Lifestyle/Household 4 (24) 13 (76)   8 (44) 10 (56)