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Table 3 Distribution of answers given by 430 patients regarding their perception of quality of information about biobanks received during CRO-Biobank multisource information process, according to education; 2009-2011

From: An effective multisource informed consent procedure for research and clinical practice: an observational study of patient understanding and awareness of their roles as research stakeholders in a cancer biobank

 

Education

  
 

Grammar school (n = 97)

Middle school (n = 127)

High school/university (n = 203)

Totala

P value

 

N (%)

N (%)

N (%)

N (%)

 

What was the source of information?

     

Brochure

     

 No

6 (6.4)

10 (8.3)

11 (5.6)

27 (6.6)

 

 Yes

88 (93.6)

110 (91.7)

186 (94.4)

384 (93.4)

0.63

  How would you rate it?

     

 Unclear

2 (2.4)

–

5 (2.7)

7 (1.9)

 

 Fairly clear

46 (54.8)

31 (29.3)

62 (33.0)

139 (36.8)

 

 Very clear

36 (42.9)

75 (70.8)

121 (64.4)

232 (61.4)

< 0.001

Physician

     

 No

5 (12.5)

8 (12.7)

19 (20.7)

32 (16.4)

 

 Yes

35 (87.5)

55 (87.3)

73 (79.4)

163 (83.6)

0.32

  How would you rate the information received?

     

 Unclear

5 (11.4)

–

5 (6.3)

10 (5.3)

 

 Fairly clear

23 (52.3)

25 (38.5)

35 (44.3)

83 (44.2)

 

 Very clear

16 (36.4)

40 (61.5)

39 (49.4)

95 (50.5)

0.03

Nurse/Biologist

     

 No

9 (17.3)

7 (9.7)

13 (9.0)

29 (10.8)

 

 Yes

43 (82.7)

65 (90.3)

131 (91.0)

239 (89.2)

0.24

  How would you rate the information received?

     

 Unclear

–

–

8 (5.7)

8 (3.2)

 

 Fairly clear

22 (48.9)

24 (35.3)

42 (30.7)

89 (35.2)

 

 Very clear

23 (51.1)

44 (64.7)

89 (63.6)

156 (61.7)

0.03

How would you rate the informed consent form?

     

 Insufficiently understandable

2 (2.2)

1 (0.9)

6 (3.1)

9 (2.3)

 

 Fairly understandable

59 (64.8)

61 (52.1)

95 (49.5)

215 (53.8)

 

 Very understandable

30 (33.0)

55 (47.0)

91 (47.4)

176 (44.0)

0.10

Would you like to receive additional information about the CRO-Biobank?

     

 No

41 (46.6)

55 (48.7)

76 (39.8)

172 (43.9)

 

 Yes

47 (53.4)

58 (51.3)

115 (60.2)

220 (56.1)

0.27

  1. a Numbers do not add up to the total because of missing values.