Table 1 Prominent themes
I. Ethical considerations with respect to non-therapeutic research | |
|---|---|
· Autonomy |  |
· Respect for persons |  |
· Beneficence |  |
· Non-maleficence |  |
· Discrimination (e.g. insurance and employment) |  |
· Confidentiality |  |
· Public good |  |
Patient-centered issues | |
Facilitators | Barriers |
· Communication | · Negative research culture |
· Informed consent is a continuous process | · Vulnerability of patient |
· Differing opinions | |
· Research nurse | · Psychosocial issues |
· Individual contact |  |
· Timing |  |
· Family dynamics and social support |  |
II. Health professional issues | |
Facilitators | Barriers |
· Doctor-patient relationship | · Doctor-patient relationship |
· Teamwork | · Distinction between care and research |
|  | · Time constraints |
|  | · Conflict of interest |
|  | · Lack of awareness |
|  | · Education and training |
|  | · Research ethics boards (REB) |
|  | · Funds |