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Table 1 Examples from the analysis process

From: Ethical concerns when recruiting children with cancer for research: Swedish healthcare professionals’ perceptions and experiences

Meaning unit

Condensed meaning unit

Code

Subcategory

Category

It is not sure at all that they have the same opinion as the parents… in conversations at the end of life, with dying children…there are even more different opinions.

Children’s opinions may differ from parents and more so in end of life

Parent-child disagreement in end of life

Disagreements

Balancing roles and interests

Many studies start already at diagnosis when the family experience chaos and I feel that the way it is now is unethical, because although each study has been ethically approved you forget that it’s too much… too much for the families…all this information in a difficult crisis situation, it’s not good.

Families become overwhelmed by the amount of information at diagnosis

Information overload

Information burden at diagnosis

Meeting informational needs