Meaning unit | Condensed meaning unit | Code | Subcategory | Category |
---|---|---|---|---|
It is not sure at all that they have the same opinion as the parents… in conversations at the end of life, with dying children…there are even more different opinions. | Children’s opinions may differ from parents and more so in end of life | Parent-child disagreement in end of life | Disagreements | Balancing roles and interests |
Many studies start already at diagnosis when the family experience chaos and I feel that the way it is now is unethical, because although each study has been ethically approved you forget that it’s too much… too much for the families…all this information in a difficult crisis situation, it’s not good. | Families become overwhelmed by the amount of information at diagnosis | Information overload | Information burden at diagnosis | Meeting informational needs |