Table 2 Participants’ perceptions about biobanks (n = 967)
| Â | Yes (n) | % | No (n) | % | Not sure (n) | % |
|---|---|---|---|---|---|---|
Donation | ||||||
Biobank research can lead to better medical treatments for future generations | 32 | 3.3 | 172 | 17.8 | 763 | 78.9 |
Biobank research can lead to improvement in an individual’s health | 68 | 7.0 | 200 | 20.7 | 699 | 72.3 |
People will have to spend monies to donate biological samples* | 313 | 32.4 | 361 | 37.3 | 293 | 30.3 |
Biobank research will only benefit private drug companies* | 321 | 32.2 | 464 | 48.0 | 182 | 18.8 |
Storage | ||||||
People who donate their biological samples will not be able to request to have their samples destroyed in the future* | 262 | 27.1 | 285 | 29.5 | 420 | 43.4 |
Biological specimens given to a biobank can be sold to anyone* | 387 | 40.0 | 233 | 24.1 | 347 | 35.9 |
Privacy | ||||||
Personal medical information stored in a biobank might be revealed to unauthorized people* | 443 | 45.8 | 204 | 21.1 | 320 | 33.1 |
Data Sharing | ||||||
Biological samples can be shared with researchers in other institutions in my country | 95 | 9.8 | 232 | 24.0 | 640 | 66.2 |
Research | ||||||
Researchers are more interested in making money from donated biological samples than doing good research* | 412 | 42.6 | 210 | 21.7 | 345 | 35.7 |
A person might be cloned if he/she donates a biological sample to a biobank* | 432 | 44.7 | 158 | 16.3 | 377 | 39.0 |
Biological samples will be used for the production of biological weapons* | 259 | 26.8 | 318 | 32.9 | 390 | 40.3 |
Return of results | ||||||
Researchers will contact people if the analysis of their biological specimens shows risk for disease | 63 | 6.5 | 247 | 25.5 | 657 | 67.9 |
Mean total perception score (mean ± SD) | 4.38 ± 1.68 |  |  |  |  |  |