Table 2 Aggregate values for each of the four SPHN ethical processing principles for the five scenarios
Scenario | Privacy | Data fairness | Accountability | Respect for persons |
|---|---|---|---|---|
Scenario 1 (data discovery on non-genetic data by a public institution) | 6.25 | 5.67 | 5.67 | 5.50 |
Scenario 2 (data discovery on genetic data by a public institution) | 6.75 | 5.25 | 5.75 | 6.50 |
Scenario 3 (data discovery on genetic data by a private institution) | 6.91 | 5.33 | 6.17 | 6.67 |
Scenario 4 (erasure request before research) | 6.42 | 3.83 | 5.75 | 6.50 |
Scenario 5 (erasure request after research) | 6.58 | 4.42 | 5.92 | 6.50 |