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Table 4 Prominent ideas around PP in the Netherlands

From: Patient participation in Dutch ethics support: practice, ideals, challenges and recommendations—a national survey

Which disadvantages of patient participation have you actually experienced/seen in practice (max 3 options)
The % exceeds 100% since individuals could choose more than one option
Reduced openness as providers would be less carefree in their discussions 16 48.5%
I did not experience any disadvantages 11 33.3%
Increased complexity of the meeting because of additional viewpoints 6 18.2%
Reduced openness as the patient requires more attention during the discussions 5 15.2%
Which advantages of patient participation have you actually experienced/seen in practice
The % exceeds 100% since individuals could choose more than one option
Improves quality of a decision (decision-content) 24 72.7%
Increases understanding of the patient perspective by the health care provider 23 69.7%
Empowers the views and voice of the patient 22 66.7%
Improves collaboration between the different stakeholders 17 51.5%
Which of the following reasons supporting patient participation are the most important according to you? (Max 2)
The % exceeds 100% since individuals could choose more than one option
Creates an opportunity to actually establish what is ‘good care’ (needs the patient’s personal voice) 32 45.1%
Empowers a patient’s perspective or at least to have the patient’s perspective heard 31 43.7%
Enables shared decision-making 27 38.0%
  
Increases collaborative practices 18 25.4%
  
Meets democratic principles and equality concerns 16 22.5%
Which of the following reasons NOT to involve patients in the ethics support intervention are most valid or applicable (Max 2)
The % exceeds 100% since individuals could choose more than one option
Patient participation reduces the ability to speak openly and freely 41 57.7%
The focus of the ethics support intervention is to develop the (moral) competencies of HCPs 22 31.0%
Patient participation could harm the patient-physician relationship, for example by a loss of trust 15 21.1%
Patient participation could be harmful for the patient 14 19.7%
Which of the following reason(s) explain the absence of patient participation in ethics support services in your practice? Which are the most important reasons? (Max 3)
The % exceeds 100% since individuals could choose more than one option
Patient participation is uncommon in my practice of ethics support 19 46.3%
The focus of ethics support interventions is mainly to improve HCPs’ moral competency 16 39.0%
Patient participation reduces the openness and ability to speak freely for HCP 11 26.8%