Table 4 Prominent ideas around PP in the Netherlands
Which disadvantages of patient participation have you actually experienced/seen in practice (max 3 options) | ||
The % exceeds 100% since individuals could choose more than one option | ||
Reduced openness as providers would be less carefree in their discussions | 16 | 48.5% |
I did not experience any disadvantages | 11 | 33.3% |
Increased complexity of the meeting because of additional viewpoints | 6 | 18.2% |
Reduced openness as the patient requires more attention during the discussions | 5 | 15.2% |
Which advantages of patient participation have you actually experienced/seen in practice | ||
The % exceeds 100% since individuals could choose more than one option | ||
Improves quality of a decision (decision-content) | 24 | 72.7% |
Increases understanding of the patient perspective by the health care provider | 23 | 69.7% |
Empowers the views and voice of the patient | 22 | 66.7% |
Improves collaboration between the different stakeholders | 17 | 51.5% |
Which of the following reasons supporting patient participation are the most important according to you? (Max 2) | ||
The % exceeds 100% since individuals could choose more than one option | ||
Creates an opportunity to actually establish what is ‘good care’ (needs the patient’s personal voice) | 32 | 45.1% |
Empowers a patient’s perspective or at least to have the patient’s perspective heard | 31 | 43.7% |
Enables shared decision-making | 27 | 38.0% |
… | ||
Increases collaborative practices | 18 | 25.4% |
… | ||
Meets democratic principles and equality concerns | 16 | 22.5% |
Which of the following reasons NOT to involve patients in the ethics support intervention are most valid or applicable (Max 2) | ||
The % exceeds 100% since individuals could choose more than one option | ||
Patient participation reduces the ability to speak openly and freely | 41 | 57.7% |
The focus of the ethics support intervention is to develop the (moral) competencies of HCPs | 22 | 31.0% |
Patient participation could harm the patient-physician relationship, for example by a loss of trust | 15 | 21.1% |
Patient participation could be harmful for the patient | 14 | 19.7% |
Which of the following reason(s) explain the absence of patient participation in ethics support services in your practice? Which are the most important reasons? (Max 3) | ||
The % exceeds 100% since individuals could choose more than one option | ||
Patient participation is uncommon in my practice of ethics support | 19 | 46.3% |
The focus of ethics support interventions is mainly to improve HCPs’ moral competency | 16 | 39.0% |
Patient participation reduces the openness and ability to speak freely for HCP | 11 | 26.8% |