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Table 3 Prevalence of PP and extent of patient involvement

From: Patient participation in Dutch ethics support: practice, ideals, challenges and recommendations—a national survey

Direct patient contact

No

41

54.7%

Yes

34

45.3%

Case based ethics support

No

12

20.7%

Yes

46

79.3%

How often would the patient be directly involved in your ethics support intervention? (by means of active and direct participation or a direct conversation with the ethics support person)

Never

3

8.8%

Hardly ever (1–10%)

9

26.5%

Sometimes (10–40%)

14

41.2%

Most of the time (40–80%)

5

14.7%

Nearly always (80–99%)

1

2.9%

Always (100%)

2

5.9%

In what way would the patient be involved in the ethics intervention process?

The patient would be informed about the ethics support activity prior to the seating

18

60.0%

The patient would actually be asked how he/she would think about the ethical issue at hand, prior to the seating

14

46.7%

The patient wouls be asked for consent to discuss his/her case (without the patient actually attending the meeting)

11

36.7%

The patient would be invited to actually participate in the CESS activity

13

43.3%

The patient would be informed about the CESS activity afterwards

6

20.0%

Other

8

26.7%