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Table 1 General demographics

From: Patient participation in Dutch ethics support: practice, ideals, challenges and recommendations—a national survey

Respondens/gender

No one indicated ‘other’ as gender

Female

58

78.4%

Male

16

21.6%

Profession

Physician

3

3.9%

Nurse

6

7.8%

Spiritual care

20

26.0%

Social worker

2

2.6%

Administrator

1

1.3%

Policy maker

8

10.4%

Lawyer

3

3.9%

Ethicist

11

14.3%

Researcher

5

6.5%

Other

18

23.4%

Case setting

The % exceeds 100% since individuals can work in more than 1 setting

General hospital

15

19.2%

Academic hospital

21

26.9%

Elderly care org

13

16.7%

Mental health org

6

7.7%

Disability (mental) care

14

17.9%

Home care

2

2.6%

Other

17

21.8%

Ethics support role

The % exceeds 100% since individuals can have more than 1 role

Member of ethics committee (not research ethics board)

19

25.0%

Chief ethics committee (not REB)

3

3.9%

Moral case deliberator

47

61.8%

Member of ethics working group (not REB)

11

14.5%

Chief/coordinator ethics working group (not REB)

9

11.8%

Ethics consultant/ethics support

17

22.4%

Moral Counselor

6

7.9%

Other

14

18.4%

Experience as ethics support person (years)

51% of our respondents had between 0 and 5 years experience in a role of ethics support

Time per month actually functioning in case-based ethics support (n = 47 of 46?)

More than half of our respondents would average 1–5 h on the case-based ethics support per month

Time per month available as ethics support person

50% of our respondents functioned between 0 and 5 h/m in ethics support role (irrespective of case-based support)

Method of ethics support

The % exceeds 100% since individuals can apply more than 1 method

Methods, such as the 4-box method, one of the US models, were also included. However, no one checked this method, so it does not appear in the results section

No method

3

6.4%

Socratic dialogue

17

36.2%

“Utrechts stappenplan”

4

8.5%

Nijmegen method

6

12.8%

Dilemma method

23

48.9%

7 Phase model

3

6.4%

Care-ethics method

5

10.6%

Relief method

11

23.4%

Mixed method

19

40.4%

Other

8

17.0%

Impairment of patients in case-based ethics support

The % exceeds 100% since individuals can have more than 1 impairment

Mental illness/mental disability

17

56.7%

Psychiatric impairment

22

73.3%

Cognitive disability e.g. dementia

20

66.7%

Disorder of consciousness

7

23.3%