Table 2 Example of the analytical process of the ethical approaches used by scientists who collect and share health data
From: What ethical approaches are used by scientists when sharing health data? An interview study
Meaning units | Initial coding | Subcategory | Category |
|---|---|---|---|
…and the patient has approved this and is informed that it will be shared and that it is understandable patient information, for example. The patient understands that it is voluntary and that they can say no as well | Give participants the opportunity to make an autonomous decision | Autonomy | Respect for rights (deontological approach) |
…that is what people expect from us | Act in accordance with what is said | Keep promises | Respect for rights (deontological approach) |
…the risk is that information will come out about people's diseases, which should not be in the public domain | Protect against bad consequences | Do no harm | Consideration of consequences (consequentialism) |