Table 1 International ELSI documents analyzed
From: Genetic/genomic testing: defining the parameters for ethical, legal and social implications (ELSI)
Document | Agency | Year | Identification |
|---|---|---|---|
Universal declaration on the human genome and human rights | United Nations Educational, Scientific and Cultural Organization (UNESCO) | 1997 | UDHG |
Convention for the protection of human rights and dignity of the human being with regard to the application of biology and medicine: convention on human rights and biomedicinea | Council of Europe | 1997 | OC |
Review of ethical issues in medical genetics | World Health Organization (WHO) | 2003 | REI |
International declaration on human genetic data | United Nations Educational, Scientific and Cultural Organization (UNESCO) | 2003 | HGD |
Declaration of Reykjavik—Ethical considerations regarding the use of genetics in health care | World Medical Association (WMA) | 2019b | DR |
Medical genetic services in developing countries. The ethical, legal, and social implications of genetic testing and screening | World Health Organization (WHO) | 2006 | MGS |
Guidelines for quality assurance in molecular genetic testing | Organization for Economic Co-operation and Development (OECD) | 2007 | GQA |
Additional protocol to the convention on human rights and biomedicine, concerning genetic testing for health purposesc | Council of Europe | 2008 | APOC |
Report of the international bioethics committee on updating its reflection on the human genome and human rights | United Nations Educational, Scientific and Cultural Organization (UNESCO) | 2015 | IBC |