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Table 1 International ELSI documents analyzed

From: Genetic/genomic testing: defining the parameters for ethical, legal and social implications (ELSI)

Document Agency Year Identification
Universal declaration on the human genome and human rights United Nations Educational, Scientific and Cultural Organization (UNESCO) 1997 UDHG
Convention for the protection of human rights and dignity of the human being with regard to the application of biology and medicine: convention on human rights and biomedicinea Council of Europe 1997 OC
Review of ethical issues in medical genetics World Health Organization (WHO) 2003 REI
International declaration on human genetic data United Nations Educational, Scientific and Cultural Organization (UNESCO) 2003 HGD
Declaration of Reykjavik—Ethical considerations regarding the use of genetics in health care World Medical Association (WMA) 2019b DR
Medical genetic services in developing countries. The ethical, legal, and social implications of genetic testing and screening World Health Organization (WHO) 2006 MGS
Guidelines for quality assurance in molecular genetic testing Organization for Economic Co-operation and Development (OECD) 2007 GQA
Additional protocol to the convention on human rights and biomedicine, concerning genetic testing for health purposesc Council of Europe 2008 APOC
Report of the international bioethics committee on updating its reflection on the human genome and human rights United Nations Educational, Scientific and Cultural Organization (UNESCO) 2015 IBC
  1. aBetter known as "Oviedo Convention". To date signed by 29 countries
  2. bAdopted in October 2005 and subsequently revised in 2009 and 2019 by the WMA General Assembly
  3. cTo date signed by 6 countries