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Table 5 Specific preferences in regards to biobanking-related aspects

From: Views of university students in Jordan towards Biobanking

Preferred level of informed consent when participating in a biobank and donating a biospecimen
Broad consent 138 (31.7)
Research-specific consent 166 (38.2)
One-time consent with conditional re-contact 131 (30.1)
Preferred procedure to protect donor identity when collecting biospecimens
Code biospecimens with possible re-identification 216 (49.7)
Irreversibly de-identify biospecimen at a later stage upon request 120 (27.6)
Irreversibly de-identify biospecimens at the time of collection 98 (22.5)
Neutral 1 (0.2)
When to contact participants if specific results to their biospecimens are generated
Re-contact under all circumstances 293 (67.4)
Re-contact me only in definite cases of having or increasing the possibility of having a disease 100 (23.0)
Re-contact me only in definite cases of having or increasing the possibility of having a treatable disease 37 (8.5)
Never re-contact me 5 (1.1)
In case of deciding to withdraw from a biobank
Disposal of biospecimens only 31 (7.1)
Deleting all data only 41 (9.4)
Disposal of both biospecimen and data 225 (51.7)
Removing donor identifiers, but keep biospecimens and data for future research 138 (31.7)