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Table 1 Relata of responsibility in the context of PAOs

From: Collective forward-looking responsibility of patient advocacy organizations: conceptual and ethical analysis

Relata of responsibility

Context of PAOs

Dimension of collectivity

Dimension of prospectivity

Subject

PAOs

PAOs as collectivities capable of intentionality, acting and moral responsibility

Long-term structures and far-reaching goals of PAOs

Object

Patient representation and advocacy

Collective representation of a shared interest, respectively, an issue that is important for many people

Campaigning refers to future situations that are not yet the case

Addressee

From a specific (patient) group to others in the health sector and society

Direct benefits to the target group, understood as a collective, and collective, indirect benefits for others

Future patients and generations

Normative standard

Legal regulations; ethical guidelines and codices; ethical principles of justice, beneficence and empowerment

Standards that are the result of a shared deliberative process

Standards that show a certain degree of stability and long-term orientation