Skip to main content

Table 3 Study participants' perception of the duties to return IFs

From: To disclose, or not to disclose? Perspectives of clinical genomics professionals toward returning incidental findings from genomic research

 

Strongly agree + agree

Neutral

Strongly disagree + disagree

IFs from genome studies should be made available to research participants?

77 (68.1)

23 (20.4)

13 (14.5)

Research participants should have a choice on what IFs are disclosed to them?

81 (71.6)

18 (15.9)

14 (12.4)

Research participants alone should make the decision on what IFs are disclosed to them?

61 (55)

27 (24.3)

23 (20.7)

I can decide what IFs are disclosed to research participants (e.g. only serious and treatable conditions)?

36 (31.9)

29 (25.7)

48 (42.4)

Research participants have the right to make decisions about receiving IFs if they have no prior knowledge or family history of the conditions listed?

61 (55)

27 (24.3)

23 (20.7)

I can override the research participant’s wishes if they consider it is not in their best interest to disclose a particular IF?

36 (31.9)

29 (25.6)

48 (42.5)

I can override the research participant’s wishes if they consider it is not in the best interest of their family members to disclose a particular IF?

35 (31)

34 (30.1)

44 (38.9)

I have no obligation to return Ifs

36 (31.9)

39 (34.5)

38 (33.6)