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Table 1 Focus group participants’ characteristics

From: Meta-consent for the secondary use of health data within a learning health system: a qualitative study of the public’s perspective

 

All participants

(n = 63)

No HSD

(FG 1-3-5–7)

(n = 29)

 ≥ HSD

(FG 2-4-6-8)

(n = 34)

Gender

Female

32 (50.8%)

12 (41.4%)

20 (58.8%)

Male

31 (49.2%)

17 (58.6%)

14 (41.2%)

Age—median (range)

50 (20–70)

51 (27–70)

47 (20–70)

Education

No HSD

27 (42.9%)

29 (100%)

0

HSD or equivalent

6 (9.5%)

0

5 (14.7%)

Diploma of Collegial Studies

13 (20.6%)

0

12 (35.3%)

University diploma or equivalent

17 (27.0%)

0

17 (50.0%)

General health*

Excellent

10 (15.9%)

4 (13.8%)

6 (17.6%)

Very good

26 (41.3%)

9 (31.0%)

17 (50.0%)

Good

20 (31.7%)

11 (37.9%)

9 (26.5%)

Fair

6 (9.5%)

4 (13.8%)

2 (5.9%)

Poor

1 (1.6%)

1 (3.4%)

0

Chronic disease—yes

21 (33.3%)

13 (44.8%)

8 (23.5%)

Family doctor—yes

52 (82.5%)

21 (72.4%)

31 (91.2%)

Healthcare visits in the last 12 months

0 time

9 (14.3%)

6 (20.7%)

3 (8.8%)

1–2 times

30 (47.6%)

12 (41.4%)

18 (52.9%)

3 + times

24 (38.1%)

11 (37.9%)

13 (38.2%)

Previous participation in health research—yes

10 (15.9%)

3 (10.3%)

7 (20.6%)

Internet at home/on cell phone—yes

61 (96.8%)

28 (96.6%)

33 (97.1%)

Frequency of Internet use

At least one time/day

56 (88.9%)

23 (79.3%)

33 (97.1%)

At least one time/week

5 (7.9%)

4 (13.8%)

1 (2.9%)

Rarely

2 (3.2%)

2 (6.9%)

0

Never

0

0

0

  1. HSD: High School Diploma
  2. *Self-reported health using the single question from the SF-36 Health Survey and the International Quality of Life Assessment: “In general, would you say that your health is excellent, very good, good, fair, or poor?” [18]