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Table 5 Number of consent forms and studies with information related to data treatment, according to consent forms

From: Facing new challenges to informed consent processes in the context of translational research: the case in CARPEM consortium

 

Number of studies

Number of consent forms

Large consent

Specific consent

Large or specific consent

Opt-out consent

Total of studies with data collection

25

29

11

6

10

2

Nature of data

24

27

9

6

10

2

Data of medical fields

21

21

8

5

6

2

Data associated to biological samples

7

7

3

0

4

0

Data about lifestyle

8

8

3

2

1

2

Genetic Data

5

5

2

0

3

0

Guarantees of data privacy

26

29

11

6

10

2

Information about codification

19

21

6

5

8

2

Right to access and to change data

26

28

10

6

10

2

Right to be opposed to the use of data

26

29

11

6

10

2

Data reuse project

7

7

4

0

3

0