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Table 1 Comparison of sites of power described by interviewees relative to those described in the literature

From: Developing a toolkit for engagement practice: sharing power with communities in priority-setting for global health research projects

Component of engagementSites of power-sharing identified by intervieweesSites of power-sharing identified by bothSites of power-sharing identified in the literature
PROCESS-During global health research priority-settingGround rules
The rules under which health research priority-setting is undertaken. They specify who can and cannot be present, who can speak and when, how different individuals’ views are used, and how a decision or closure is reached.
Leadership
Who takes the lead on key aspects of research priority-setting: planning, implementing, and ensuring outputs are fed back and used.
Goal of engagement
The reason(s) for engaging community members in global health research priority-setting. Can be instrumental (i.e. as a means to another goal) and/or transformative (i.e. to generate empowerment).
 Transparency
Whether there is openness and honesty about any constraints surrounding the priority-setting process, the ground rules for priority-setting, and what happens after priority-setting.
Framing
What issues can be brought into the priority-setting space and what issues are not allowed; What information is presented or shared with participants at the start of the priority-setting process.
Range
Whether community participants span a wide spectrum of relevant roles and demographics. Relevant roles could be: patients, families and carers, providers, purchasers, payers, policymakers, and product makers. Ensuring the presence of marginalised groups is also key to achieving range.
 Space
The physical setting in which health research priority-setting is undertaken.
Stage of participation
When community members are allowed to participate in the health research priority-setting process.
 
 Respect
Whether interpersonal and cultural respect are shown for community participants.
Level of participation
The mode(s) of participation assumed by community participants during health research priority-setting.
 
 Community assets
Features of a community or a community organisation partner that can be drawn upon to support the representation and voices of its members, esp. those considered marginalised, during health research priority-setting.
Representation
Whether community members are represented during health research priority-setting. Encompasses considerations related to the channel of representation and the genuineness of representation.
 
  Having voice
Whether community participants are able to speak and be heard during health research priority-setting. Encompasses considerations related to facilitation, documentation, and synthesis of global health research priorities.
 
  Mass
The numbers of participants representing powerful versus less powerful community members.
 
AFTERMATH-After global health research priority-settingAccountability
Responsibilities of researchers, research institutions, and community members after priority-setting.