Component of engagement | Sites of power-sharing identified by interviewees | Sites of power-sharing identified by both | Sites of power-sharing identified in the literature |
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PROCESS-During global health research priority-setting | Ground rules The rules under which health research priority-setting is undertaken. They specify who can and cannot be present, who can speak and when, how different individuals’ views are used, and how a decision or closure is reached. | Leadership Who takes the lead on key aspects of research priority-setting: planning, implementing, and ensuring outputs are fed back and used. | Goal of engagement The reason(s) for engaging community members in global health research priority-setting. Can be instrumental (i.e. as a means to another goal) and/or transformative (i.e. to generate empowerment). |
Transparency Whether there is openness and honesty about any constraints surrounding the priority-setting process, the ground rules for priority-setting, and what happens after priority-setting. | Framing What issues can be brought into the priority-setting space and what issues are not allowed; What information is presented or shared with participants at the start of the priority-setting process. | Range Whether community participants span a wide spectrum of relevant roles and demographics. Relevant roles could be: patients, families and carers, providers, purchasers, payers, policymakers, and product makers. Ensuring the presence of marginalised groups is also key to achieving range. | |
Space The physical setting in which health research priority-setting is undertaken. | Stage of participation When community members are allowed to participate in the health research priority-setting process. | ||
Respect Whether interpersonal and cultural respect are shown for community participants. | Level of participation The mode(s) of participation assumed by community participants during health research priority-setting. | ||
Community assets Features of a community or a community organisation partner that can be drawn upon to support the representation and voices of its members, esp. those considered marginalised, during health research priority-setting. | Representation Whether community members are represented during health research priority-setting. Encompasses considerations related to the channel of representation and the genuineness of representation. | ||
Having voice Whether community participants are able to speak and be heard during health research priority-setting. Encompasses considerations related to facilitation, documentation, and synthesis of global health research priorities. | |||
Mass The numbers of participants representing powerful versus less powerful community members. | |||
AFTERMATH-After global health research priority-setting | Accountability Responsibilities of researchers, research institutions, and community members after priority-setting. |