Ethical values supporting the disclosure of incidental and secondary findings in clinical genomic testing: a qualitative study

Table 1 Examples of interview questions

How do you define IFs in clinical ES?
What kind of IFs do you report, firstly, from the laboratory to the clinician and, secondly, from the clinician to the patient?
What do you think about the intentional search for SFs?
What kind of policy regarding IFs and SFs would you like to develop?
What difficulties do you experience in your practice and (future) policy regarding IFs and SFs?
How is the possibility of IFs addressed during genetic counselling?
What might affect a patient’s interest in IFs and SFs?
What is your policy regarding a patient’s possibility to opt out of IFs?
How would you define a patient’s role in the context of IFs and SFs? How does this role relate to your professional role?
What impact might a reported IF or SF have on patients?
To what extent do you consider a personalised policy concerning IFs and SFs appropriate and feasible?

Abbreviations used: IF(s) Incidental finding(s); SF(s) Secondary finding(s); ES Exome sequencing

ISSN: 1472-6939