Table 6 Summary of identified themes from open text box responses of participant concerns
Themes of concerns (N = 247) | N (%)a |
|---|---|
Data security | 55 (22.3) |
Commercial use or gains | 33 (13.4) |
Autonomy of choice | 27 (10.9) |
Consent | 25 (10.1) |
Implications for self | 20 (8.1) |
Personal ethics on research type | 18 (7.3) |
Privacy | 16 (6.5) |
Access | 12 (4.9) |
Trust | 11 (4.5) |
Misuse | 10 (4.1) |
Family implications | 9 (3.6) |
Data management | 7 (2.8) |
Interest in area of research | 5 (2.0) |
Questionnaire comment | 5 (2.0) |
Objection to sharing | 4 (1.6) |
Positive response to sharing | 35 (14.2) |