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Table 2 Opened and closed questions

From: Potential research ethics violations against an indigenous tribe in Ecuador: a mixed methods approach

Questions

 

Sex

Male

Female

n = 40

n = 32

n

%

n

%

Q1. Have you had blood samples taken?

Yes

36

52.9

32

47.1

No

4

100.0

0

0

Q2. How many times have you taken blood samples?

None

3

100.0

0

0

1 to 2

29

52.7

26

47.3

3 to 4

3

100.0

0

0

 > 5

1

33.3

2

66.7

NK

4

50.0

4

50.0

Q3. Did you receive any kind of pressure or coercion for the extraction of blood samples?

Yes

11

52.4

10

47.6

No

19

57.6

14

42.4

NK

10

55.6

8

44.4

Q4. Did they explain the purpose of this in your language?

Yes

29

53.7

25

46.3

No

9

56.3

7

43.8

NK

2

100.0

0

0

What did you understand of the purpose?

Some diseases

26

59.1

18

40.9

Medical checks

1

50.0

1

50.0

Hepatitis

3

42.9

4

57.1

Paludism

1

33.3

2

66.7

NK

9

56.3

7

43.7

Q5. Did you sign any type of informed consent prior to the extraction?

Yes

8

66.7

4

33.3

No

26

55.3

21

44.7

NK

6

46.2

7

53.8

Q6. Was it national or foreign personnel that approached you for the study?

National

15

62.5

9

37.5

Foreign

11

45.8

13

54.2

Both

5

71.4

2

28.6

NK

9

52.9

8

47.1

Q8. Do you know anyone who has had blood samples taken?

Yes

34

56.7

26

43.3

No

0

0.0

0

0.0

NK

6

50.0

6

50.0

Q10. Were there sick people in your community at the time of?

Yes

1

50.0

1

50.0

No

18

56.3

14

43.8

NK

21

55.3

17

44.7

Q11. Did the physicians return to perform some type of treatment related to the samples?

Yes

0

0.0

0

0.0

No

38

55.9

30

44.1

NK

2

50.0

2

50.0

Q12. Did they tell you that the samples were going to be moved out of Ecuador?

Yes

8

61.5

5

38.5

No

28

51.9

26

48.1

NK

4

80.0

1

20.0

Q13. Would you agree that your blood or a product of it is marketed by third parties?

Yes

0

0

0

0

No

38

54.3

32

45.7

NK

2

100.0

0

0

Q14. Do you think your rights were affected in any way?

Yes

31

54.4

26

45.6

No

0

0.0

0

0.0

NK

9

60.0

6

40.0

  1. NK not know