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Table 2 Opened and closed questions

From: Potential research ethics violations against an indigenous tribe in Ecuador: a mixed methods approach

Questions   Sex
Male Female
n = 40 n = 32
n % n %
Q1. Have you had blood samples taken? Yes 36 52.9 32 47.1
No 4 100.0 0 0
Q2. How many times have you taken blood samples? None 3 100.0 0 0
1 to 2 29 52.7 26 47.3
3 to 4 3 100.0 0 0
 > 5 1 33.3 2 66.7
NK 4 50.0 4 50.0
Q3. Did you receive any kind of pressure or coercion for the extraction of blood samples? Yes 11 52.4 10 47.6
No 19 57.6 14 42.4
NK 10 55.6 8 44.4
Q4. Did they explain the purpose of this in your language? Yes 29 53.7 25 46.3
No 9 56.3 7 43.8
NK 2 100.0 0 0
What did you understand of the purpose? Some diseases 26 59.1 18 40.9
Medical checks 1 50.0 1 50.0
Hepatitis 3 42.9 4 57.1
Paludism 1 33.3 2 66.7
NK 9 56.3 7 43.7
Q5. Did you sign any type of informed consent prior to the extraction? Yes 8 66.7 4 33.3
No 26 55.3 21 44.7
NK 6 46.2 7 53.8
Q6. Was it national or foreign personnel that approached you for the study? National 15 62.5 9 37.5
Foreign 11 45.8 13 54.2
Both 5 71.4 2 28.6
NK 9 52.9 8 47.1
Q8. Do you know anyone who has had blood samples taken? Yes 34 56.7 26 43.3
No 0 0.0 0 0.0
NK 6 50.0 6 50.0
Q10. Were there sick people in your community at the time of? Yes 1 50.0 1 50.0
No 18 56.3 14 43.8
NK 21 55.3 17 44.7
Q11. Did the physicians return to perform some type of treatment related to the samples? Yes 0 0.0 0 0.0
No 38 55.9 30 44.1
NK 2 50.0 2 50.0
Q12. Did they tell you that the samples were going to be moved out of Ecuador? Yes 8 61.5 5 38.5
No 28 51.9 26 48.1
NK 4 80.0 1 20.0
Q13. Would you agree that your blood or a product of it is marketed by third parties? Yes 0 0 0 0
No 38 54.3 32 45.7
NK 2 100.0 0 0
Q14. Do you think your rights were affected in any way? Yes 31 54.4 26 45.6
No 0 0.0 0 0.0
NK 9 60.0 6 40.0
  1. NK not know