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Table 4 Main themes identified

From: “You would not be in a hurry to go back home”: patients’ willingness to participate in HIV/AIDS clinical trials at a clinical and research facility in Kampala, Uganda

Topic

Main theme 1: Special Status

Main theme 2: Improved health status

Main theme 3:

Meals

Main theme 4:

Ultimate beneficiaries of CTs

Perception of non-monetary benefits

Sub-themes

jumping the queue

Seen by senior physicians

Spending less time at the clinic

Frequent Communication by study team

Value of tests

Subthemes

- condition of living

Symptoms reduced

Reduced number of visits to the clinic

Sub themes

Breakfast

Lunch

supper

Sub themes

-pharmaceutical companies

Patients

hospitals

Perception of monitory benefits

Main theme

Compensation for time

Main theme

Financial reimbursement

  

Sub theme

Satisfactory compensation

Un satisfactory compensation

Sub theme

Satisfactory reimbursement

Non-satisfactory reimbursement

  

Institutional factors and willingness to participate in CTs

Main theme

Main theme:

Sub theme

 

Selection of CT participants

CT information

Duration at the clinic

 

Sub theme:

Fair selection

un fair selection of CT participants

Awareness of CTs

Source of information about CTs

long period as a clinic patient

short period as a patient

 

Barriers to CT participation

Sub theme:

Breach of

Sub theme:

many tests conducted in CTs

Sub theme

Myths about CTs

Sub theme

Side effects of CT drugs

Confidentiality

lack of privacy

loss of blood

-Fear of CT drugs

-treatment failure

-Death