TY - JOUR AU - Kirk, M. D. AU - Pires, S. M. AU - Black, R. E. AU - Caipo, M. AU - Crump, J. A. AU - Devleesschauwer, B. PY - 2015 DA - 2015// TI - World Health Organization estimates of the global and regional disease burden of 22 foodborne bacterial, protozoal, and viral diseases, 2010: a data synthesis JO - PLoS Med VL - 12 UR - https://doi.org/10.1371/journal.pmed.1001921 DO - 10.1371/journal.pmed.1001921 ID - Kirk2015 ER - TY - STD TI - Raviglione M, Sulis G. Tuberculosis 2015: burden, challenges and strategy for control and elimination. Infect Dis Rep. 2016;8(2):6570. https://doi.org/10.4081/idr.2016.6570. ID - ref2 ER - TY - JOUR AU - Wang, H. AU - Wolock, T. M. AU - Carter, A. AU - Nguyen, G. AU - Kyu, H. H. AU - Gakidou, E. PY - 2016 DA - 2016// TI - Estimates of global, regional, and national incidence, prevalence, and mortality of HIV, 1980–2015: the global burden of disease study 2015 JO - Lancet HIV VL - 3 UR - https://doi.org/10.1016/S2352-3018(16)30087-X DO - 10.1016/S2352-3018(16)30087-X ID - Wang2016 ER - TY - JOUR AU - Fan, V. Y. AU - Jamison, D. T. AU - Summers, L. H. PY - 2018 DA - 2018// TI - Pandemic risk: how large are the expected losses? JO - Bull World Health Organ VL - 96 UR - https://doi.org/10.2471/BLT.17.199588 DO - 10.2471/BLT.17.199588 ID - Fan2018 ER - TY - BOOK AU - Hawker, J. AU - Begg, N. AU - Reintjes, R. AU - Ekdahl, K. AU - Edeghere, O. AU - Steenbergen, J. PY - 2018 DA - 2018// TI - Communicable disease control and health protection handbook PB - Sons, Ltd CY - Chichester ID - Hawker2018 ER - TY - STD TI - Gilbert GL, Degeling C, Johnson J. Communicable Disease Surveillance Ethics in the Age of Big Data and New Technology. Asian Bioethics Rev. 2019. ID - ref6 ER - TY - JOUR AU - Sintchenko, V. AU - Iredell, J. R. AU - Gilbert, G. L. PY - 2007 DA - 2007// TI - Pathogen profiling for disease management and surveillance JO - Nat Rev Microbiol VL - 5 UR - https://doi.org/10.1038/nrmicro1656 DO - 10.1038/nrmicro1656 ID - Sintchenko2007 ER - TY - STD TI - Gilbert GL, Selgelid M. Populations, patients, germs and genes – ethics of genomics and informatics in communicable disease control. In: Sintchenko V, editor: Infectious Disease Informatics. Basel: Springer; 2010. p. 397–418. ID - ref8 ER - TY - JOUR AU - Kwong, J. C. AU - McCallum, N. AU - Sintchenko, V. AU - Howden, B. P. PY - 2015 DA - 2015// TI - Whole genome sequencing in clinical and public health microbiology JO - Pathology. VL - 47 UR - https://doi.org/10.1097/PAT.0000000000000235 DO - 10.1097/PAT.0000000000000235 ID - Kwong2015 ER - TY - JOUR AU - Ashton, P. M. AU - Nair, S. AU - Peters, T. M. AU - Bale, J. A. AU - Powell, D. G. AU - Painset, A. PY - 2016 DA - 2016// TI - Identification of Salmonella for public health surveillance using whole genome sequencing JO - PeerJ. VL - 4 UR - https://doi.org/10.7717/peerj.1752 DO - 10.7717/peerj.1752 ID - Ashton2016 ER - TY - JOUR AU - Satta, G. AU - Atzeni, A. AU - McHugh, T. D. PY - 2017 DA - 2017// TI - Mycobacterium tuberculosis and whole genome sequencing: a practical guide and online tools available for the clinical microbiologist JO - Clin Microbiol Infect VL - 23 UR - https://doi.org/10.1016/j.cmi.2016.09.005 DO - 10.1016/j.cmi.2016.09.005 ID - Satta2017 ER - TY - JOUR AU - Inns, T. AU - Ashton, P. M. AU - Herrera-Leon, S. AU - Lighthill, J. AU - Foulkes, S. AU - Jombart, T. PY - 2017 DA - 2017// TI - Prospective use of whole genome sequencing (WGS) detected a multi-country outbreak of Salmonella Enteritidis JO - Epidemiol Infect VL - 145 UR - https://doi.org/10.1017/S0950268816001941 DO - 10.1017/S0950268816001941 ID - Inns2017 ER - TY - JOUR AU - Gurjav, U. AU - Outhred, A. C. AU - Jelfs, P. AU - McCallum, N. AU - Wang, Q. AU - Hill-Cawthorne, G. A. PY - 2016 DA - 2016// TI - Whole genome sequencing demonstrates limited transmission within identified mycobacterium tuberculosis clusters in New South Wales, Australia JO - PLoS One VL - 11 UR - https://doi.org/10.1371/journal.pone.0163612 DO - 10.1371/journal.pone.0163612 ID - Gurjav2016 ER - TY - JOUR AU - Koser, C. U. AU - Holden, M. T. AU - Ellington, M. J. AU - Cartwright, E. J. AU - Brown, N. M. AU - Ogilvy-Stuart, A. L. PY - 2012 DA - 2012// TI - Rapid whole-genome sequencing for investigation of a neonatal MRSA outbreak JO - N Engl J Med VL - 366 UR - https://doi.org/10.1056/NEJMoa1109910 DO - 10.1056/NEJMoa1109910 ID - Koser2012 ER - TY - JOUR AU - Arnold, A. AU - Witney, A. A. AU - Vergnano, S. AU - Roche, A. AU - Cosgrove, C. A. AU - Houston, A. PY - 2016 DA - 2016// TI - XDR-TB transmission in London: case management and contact tracing investigation assisted by early whole genome sequencing JO - J Inf Secur VL - 73 ID - Arnold2016 ER - TY - JOUR AU - Dudas, G. AU - Carvalho, L. M. AU - Bedford, T. AU - Tatem, A. J. AU - Baele, G. AU - Faria, N. R. PY - 2017 DA - 2017// TI - Virus genomes reveal factors that spread and sustained the Ebola epidemic JO - Nature. VL - 544 UR - https://doi.org/10.1038/nature22040 DO - 10.1038/nature22040 ID - Dudas2017 ER - TY - JOUR AU - Laura, F. AU - PCG AU - Qinning, W. AU - Torsten, S. AU - Vitali, S. AU - Kathryn, G. PY - 2018 DA - 2018// TI - Incorporating whole-genome sequencing into public health surveillance: lessons from prospective sequencing of Salmonella Typhimurium in Australia JO - Foodborne Pathog Dis VL - 15 UR - https://doi.org/10.1089/fpd.2017.2352 DO - 10.1089/fpd.2017.2352 ID - Laura2018 ER - TY - STD TI - Ashton PM, Peters T, Ameh L, McAleer R, Petrie S, Nair S, et al. Whole genome sequencing for the retrospective investigation of an outbreak of Salmonella Typhimurium DT 8. PLoS Curr. 2015;7:ecurrents.outbreaks.2c05a47d292f376afc5a6fcdd8a7a3b6. ID - ref18 ER - TY - JOUR AU - Byrne, L. AU - Fisher, I. AU - Peters, T. AU - Mather, A. AU - Thomson, N. AU - Rosner, B. PY - 2014 DA - 2014// TI - A multi-country outbreak of Salmonella Newport gastroenteritis in Europe associated with watermelon from Brazil, confirmed by whole genome sequencing: October 2011 to January 2012 JO - Euro Surveill VL - 19 UR - https://doi.org/10.2807/1560-7917.ES2014.19.31.20866 DO - 10.2807/1560-7917.ES2014.19.31.20866 ID - Byrne2014 ER - TY - JOUR AU - Bakker, H. C. AU - Allard, M. W. AU - Bopp, D. AU - Brown, E. W. AU - Fontana, J. AU - Iqbal, Z. PY - 2014 DA - 2014// TI - Rapid whole-genome sequencing for surveillance of Salmonella enterica serovar enteritidis JO - Emerg Infect Dis VL - 20 UR - https://doi.org/10.3201/eid2008.131399 DO - 10.3201/eid2008.131399 ID - Bakker2014 ER - TY - JOUR AU - Hoffmann, M. AU - Luo, Y. AU - Monday, S. R. AU - Gonzalez-Escalona, N. AU - Ottesen, A. R. AU - Muruvanda, T. PY - 2015 DA - 2015// TI - Tracing origins of the Salmonella Bareilly strain causing a food-borne outbreak in the United States JO - J Infect Dis VL - 213 UR - https://doi.org/10.1093/infdis/jiv297 DO - 10.1093/infdis/jiv297 ID - Hoffmann2015 ER - TY - JOUR AU - Inns, T. AU - Lane, C. AU - Peters, T. AU - Dallman, T. AU - Chatt, C. AU - McFarland, N. PY - 2015 DA - 2015// TI - A multi-country Salmonella Enteritidis phage type 14b outbreak associated with eggs from a German producer:‘near real-time’application of whole genome sequencing and food chain investigations, United Kingdom, may to September 2014 JO - Eurosurveillance. VL - 20 UR - https://doi.org/10.2807/1560-7917.ES2015.20.16.21098 DO - 10.2807/1560-7917.ES2015.20.16.21098 ID - Inns2015 ER - TY - JOUR AU - Edelstein, M. AU - Lee, L. M. AU - Herten-Crabb, A. AU - Heymann, D. L. AU - Harper, D. R. PY - 2018 DA - 2018// TI - Strengthening global public health surveillance through data and benefit sharing JO - Emerg Infect Dis VL - 24 UR - https://doi.org/10.3201/eid2407.151830 DO - 10.3201/eid2407.151830 ID - Edelstein2018 ER - TY - CHAP AU - Besser, J. M. ED - M'ikanatha, N. ED - Lynfield, R. ED - Beneden, C. ED - Valk, H. PY - 2013 DA - 2013// TI - Use of molecular epidemiology in infectious disease surveillance BT - Infectious disease surveillance PB - Sons CY - New York UR - https://doi.org/10.1002/9781118543504.ch39 DO - 10.1002/9781118543504.ch39 ID - Besser2013 ER - TY - JOUR AU - Gardy, J. L. AU - Loman, N. J. PY - 2018 DA - 2018// TI - Towards a genomics-informed, real-time, global pathogen surveillance system JO - Nat Rev Genet VL - 19 UR - https://doi.org/10.1038/nrg.2017.88 DO - 10.1038/nrg.2017.88 ID - Gardy2018 ER - TY - STD TI - Garattini C, RJ, Ausyah DN, Sartain F, Kozlakidis Z. Big data analytics, infectious diseases and associated ethical impacts. Philos Technol. 2017. ID - ref26 ER - TY - JOUR AU - Chowell, G. AU - Cleaton, J. M. AU - Viboud, C. PY - 2016 DA - 2016// TI - Elucidating transmission patterns from internet reports: Ebola and Middle East respiratory syndrome as case studies JO - J Infect Dis VL - 214 UR - https://doi.org/10.1093/infdis/jiw356 DO - 10.1093/infdis/jiw356 ID - Chowell2016 ER - TY - CHAP AU - Collier, N. H. PY - 2015 DA - 2015// TI - A Review of Web-based Epidemic Detection BT - The Politics of Surveillance and Response to Disease Outbreaks: The New Frontier for States and Non-state Actors. ID - Collier2015 ER - TY - JOUR AU - Wong, Z. S. Y. AU - Zhou, J. AU - Zhang, Q. PY - 2019 DA - 2019// TI - Artificial intelligence for infectious disease big data analytics JO - Infect Dis Health VL - 24 UR - https://doi.org/10.1016/j.idh.2018.10.002 DO - 10.1016/j.idh.2018.10.002 ID - Wong2019 ER - TY - JOUR AU - Charles-Smith, L. E. AU - Reynolds, T. L. AU - Cameron, M. A. AU - Conway, M. AU - Lau, E. H. AU - Olsen, J. M. PY - 2015 DA - 2015// TI - Using social media for actionable disease surveillance and outbreak management: a systematic literature review JO - PLoS One VL - 10 UR - https://doi.org/10.1371/journal.pone.0139701 DO - 10.1371/journal.pone.0139701 ID - Charles-Smith2015 ER - TY - JOUR AU - Yuan, M. AU - Boston-Fisher, N. AU - Luo, Y. AU - Verma, A. AU - Buckeridge, D. L. PY - 2019 DA - 2019// TI - A systematic review of aberration detection algorithms used in public health surveillance JO - J Biomed Inform VL - 94 UR - https://doi.org/10.1016/j.jbi.2019.103181 DO - 10.1016/j.jbi.2019.103181 ID - Yuan2019 ER - TY - JOUR AU - Bansal, S. AU - Chowell, G. AU - Simonsen, L. AU - Vespignani, A. AU - Viboud, C. PY - 2016 DA - 2016// TI - Big data for infectious disease surveillance and modeling JO - J Infect Dis VL - 214 UR - https://doi.org/10.1093/infdis/jiw400 DO - 10.1093/infdis/jiw400 ID - Bansal2016 ER - TY - STD TI - Public Health Act 2010. No 127, New South Wales Government, Australia. 2010. https://www.legislation.nsw.gov.au/#/view/act/2010/127. UR - https://www.legislation.nsw.gov.au/#/view/act/2010/127 ID - ref33 ER - TY - JOUR AU - Lee, L. M. AU - Heilig, C. M. AU - White, A. PY - 2012 DA - 2012// TI - Ethical justification for conducting public health surveillance without patient consent JO - Am J Public Health VL - 102 UR - https://doi.org/10.2105/AJPH.2011.300297 DO - 10.2105/AJPH.2011.300297 ID - Lee2012 ER - TY - JOUR AU - Rubel, A. PY - 2012 DA - 2012// TI - Justifying public health surveillance: basic interests, unreasonable exercise, and privacy JO - Kennedy Institute Ethics J VL - 22 UR - https://doi.org/10.1353/ken.2012.0001 DO - 10.1353/ken.2012.0001 ID - Rubel2012 ER - TY - JOUR AU - Davies, S. E. AU - Youde, J. PY - 2012 DA - 2012// TI - The IHR (2005), disease surveillance, and the individual in Global Health politics JO - Int J Hum Rights VL - 17 UR - https://doi.org/10.1080/13642987.2012.710840 DO - 10.1080/13642987.2012.710840 ID - Davies2012 ER - TY - JOUR AU - Fairchild, A. L. AU - Haghdoost, A. A. AU - Bayer, R. AU - Selgelid, M. J. AU - Dawson, A. AU - Saxena, A. PY - 2017 DA - 2017// TI - Ethics of public health surveillance: new guidelines JO - Lancet Public Health VL - 2 UR - https://doi.org/10.1016/S2468-2667(17)30136-6 DO - 10.1016/S2468-2667(17)30136-6 ID - Fairchild2017 ER - TY - JOUR AU - Ginsberg, J. AU - Mohebbi, M. H. AU - Patel, R. S. AU - Brammer, L. AU - Smolinski, M. S. AU - Brilliant, L. PY - 2009 DA - 2009// TI - Detecting influenza epidemics using search engine query data JO - Nature. VL - 457 UR - https://doi.org/10.1038/nature07634 DO - 10.1038/nature07634 ID - Ginsberg2009 ER - TY - JOUR AU - Lazer, D. AU - Kennedy, R. AU - King, G. AU - Vespignani, A. PY - 2014 DA - 2014// TI - Big data. The parable of Google flu: traps in big data analysis JO - Science. VL - 343 UR - https://doi.org/10.1126/science.1248506 DO - 10.1126/science.1248506 ID - Lazer2014 ER - TY - STD TI - Lazer D, Kennedy S, et al. Wired. 2015. ID - ref40 ER - TY - JOUR AU - Fairchild, A. L. AU - Bayer, R. PY - 2004 DA - 2004// TI - Ethics and the conduct of public health surveillance JO - Science. VL - 303 UR - https://doi.org/10.1126/science.1094038 DO - 10.1126/science.1094038 ID - Fairchild2004 ER - TY - JOUR AU - Rothstein, M. A. PY - 2008 DA - 2008// TI - Keeping your genes private JO - Sci Am VL - 299 UR - https://doi.org/10.1038/scientificamerican0908-64 DO - 10.1038/scientificamerican0908-64 ID - Rothstein2008 ER - TY - CHAP AU - Gilbert, G. AU - Selgelid, M. ED - Enemark, C. ED - Selgelid, M. PY - 2012 DA - 2012// TI - Electronic surveillance for communicable disease prevention and control: health protection or a threat to privacy and automony BT - Ethics and security aspects of infectious disease control PB - Ashgate Publishing Ltd CY - Farnham ID - Gilbert2012 ER - TY - STD TI - Johnson SB, Parker M. The ethics of sequencing infectious disease pathogens for clinical and public health. Nat Rev Genetics. 2019;20(6):313–15. ID - ref44 ER - TY - JOUR AU - Vayena, E. AU - Salathé, M. AU - Madoff, L. C. AU - Brownstein, J. S. PY - 2015 DA - 2015// TI - Ethical challenges of big data in public health JO - PLoS Comput Biol VL - 11 UR - https://doi.org/10.1371/journal.pcbi.1003904 DO - 10.1371/journal.pcbi.1003904 ID - Vayena2015 ER - TY - JOUR AU - Lubarsky, B. PY - 2017 DA - 2017// TI - Re-identficiation of "anonymized data" JO - Georgetown Law Technol Rev VL - 202 ID - Lubarsky2017 ER - TY - STD TI - Culnane C, Rubinstein BI, Teague V. Health data in an open world. arXiv preprint arXiv. 2017;171205627. https://arxiv.org/abs/1712.05627. UR - https://arxiv.org/abs/1712.05627 ID - ref47 ER - TY - JOUR AU - Emam, K. AU - Jonker, E. AU - Arbuckle, L. AU - Malin, B. PY - 2011 DA - 2011// TI - A systematic review of re-identification attacks on health data JO - PLoS One VL - 6 UR - https://doi.org/10.1371/journal.pone.0028071 DO - 10.1371/journal.pone.0028071 ID - Emam2011 ER - TY - JOUR AU - Degeling, C. AU - Johnson, J. AU - Gilbert, G. L. PY - 2019 DA - 2019// TI - Perspectives of Australian policy-makers on the potential benefits and risks of technologically enhanced communicable disease surveillance–a modified Delphi survey JO - Health Res Policy Syst VL - 17 UR - https://doi.org/10.1186/s12961-019-0440-3 DO - 10.1186/s12961-019-0440-3 ID - Degeling2019 ER - TY - JOUR AU - Kho, M. E. AU - Duffett, M. AU - Willison, D. J. AU - Cook, D. J. AU - Brouwers, M. C. PY - 2009 DA - 2009// TI - Written informed consent and selection bias in observational studies using medical records: systematic review JO - Bmj. VL - 338 UR - https://doi.org/10.1136/bmj.b866 DO - 10.1136/bmj.b866 ID - Kho2009 ER - TY - JOUR AU - Hill, E. M. AU - Turner, E. L. AU - Martin, R. M. AU - Donovan, J. L. PY - 2013 DA - 2013// TI - “Let’s get the best quality research we can”: public awareness and acceptance of consent to use existing data in health research: a systematic review and qualitative study JO - BMC Med Res Methodol VL - 13 UR - https://doi.org/10.1186/1471-2288-13-72 DO - 10.1186/1471-2288-13-72 ID - Hill2013 ER - TY - JOUR AU - Whiddett, R. AU - Hunter, I. AU - Engelbrecht, J. AU - Handy, J. PY - 2006 DA - 2006// TI - Patients’ attitudes towards sharing their health information JO - Int J Med Inform VL - 75 UR - https://doi.org/10.1016/j.ijmedinf.2005.08.009 DO - 10.1016/j.ijmedinf.2005.08.009 ID - Whiddett2006 ER - TY - JOUR AU - Grande, D. AU - Mitra, N. AU - Shah, A. AU - Wan, F. AU - Asch, D. A. PY - 2013 DA - 2013// TI - Public preferences about secondary uses of electronic health information JO - JAMA Intern Med VL - 173 UR - https://doi.org/10.1001/jamainternmed.2013.9166 DO - 10.1001/jamainternmed.2013.9166 ID - Grande2013 ER - TY - JOUR AU - Stockdale, J. AU - Cassell, J. AU - Ford, E. PY - 2019 DA - 2019// TI - "Giving something back": A systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of Ireland JO - Wellcome Open Res VL - 3 UR - https://doi.org/10.12688/wellcomeopenres.13531.2 DO - 10.12688/wellcomeopenres.13531.2 ID - Stockdale2019 ER - TY - JOUR AU - Degeling, C. AU - Thomas, R. AU - Rychetnik, L. PY - 2019 DA - 2019// TI - Citizens’ juries can bring public voices on overdiagnosis into policy making JO - BMJ. VL - 364 UR - https://doi.org/10.1136/bmj.l351 DO - 10.1136/bmj.l351 ID - Degeling2019 ER - TY - JOUR AU - Street, J. AU - Duszynski, K. AU - Krawczyk, S. AU - Braunack-Mayer, A. PY - 2014 DA - 2014// TI - The use of citizens' juries in health policy decision-making: a systematic review JO - Soc Sci Med VL - 109 UR - https://doi.org/10.1016/j.socscimed.2014.03.005 DO - 10.1016/j.socscimed.2014.03.005 ID - Street2014 ER - TY - CHAP AU - Degeling, C. ED - Atkinson, P. A. ED - Williams, R. A. ED - Cernat, A. ED - Sakshaug, J. W. PY - 2019 DA - 2019// TI - Deliberative Methods BT - SAGE Research Methods Foundation. In Press PB - Sage Publications, Ltd CY - Thousand Oaks ID - Degeling2019 ER - TY - JOUR AU - Degeling, C. AU - Rychetnik, L. AU - Street, J. AU - Thomas, R. AU - Carter, S. M. PY - 2017 DA - 2017// TI - Influencing health policy through public deliberation: lessons learned from two decades of Citizens'/community juries JO - Soc Sci Med VL - 179 UR - https://doi.org/10.1016/j.socscimed.2017.03.003 DO - 10.1016/j.socscimed.2017.03.003 ID - Degeling2017 ER - TY - JOUR AU - Niessen, C. PY - 2019 DA - 2019// TI - When citizen deliberation enters real politics: how politicians and stakeholders envision the place of a deliberative mini-public in political decision-making JO - Policy Sci VL - 52 UR - https://doi.org/10.1007/s11077-018-09346-8 DO - 10.1007/s11077-018-09346-8 ID - Niessen2019 ER - TY - JOUR AU - Degeling, C. AU - Carter, S. AU - Rychetnik, L. PY - 2015 DA - 2015// TI - Which public and why deliberate? – a scoping review of public deliberation in public health and health policy research JO - Soc Sci Med VL - 131 UR - https://doi.org/10.1016/j.socscimed.2015.03.009 DO - 10.1016/j.socscimed.2015.03.009 ID - Degeling2015 ER - TY - JOUR AU - Tully, M. P. AU - Bozentko, K. AU - Clement, S. AU - Hunn, A. AU - Hassan, L. AU - Norris, R. PY - 2018 DA - 2018// TI - Investigating the Extent to Which Patients Should Control Access to Patient Records for Research: A Deliberative Process Using Citizens' Juries JO - J Med Internet Res VL - 20 UR - https://doi.org/10.2196/jmir.7763 DO - 10.2196/jmir.7763 ID - Tully2018 ER - TY - JOUR AU - Newson, A. AU - Lacey, S. AU - Dowling, D. AU - Murray, S. AU - Sue, C. AU - Thorburn, D. R. PY - 2019 DA - 2019// TI - Public attitudes towards novel reproductive technologies: a citizens’ jury on mitochondrial donation JO - Hum Reprod VL - 34 UR - https://doi.org/10.1093/humrep/dez021 DO - 10.1093/humrep/dez021 ID - Newson2019 ER - TY - JOUR AU - Thomas, R. AU - Sims, R. AU - Beller, E. AU - Scott, A. M. AU - Doust, J. AU - Couteur, D. PY - 2019 DA - 2019// TI - An Australian community jury to consider case-finding for dementia: differences between informed community preferences and general practice guidelines JO - Health Expect VL - 22 UR - https://doi.org/10.1111/hex.12871 DO - 10.1111/hex.12871 ID - Thomas2019 ER - TY - JOUR AU - Burgess, M. M. PY - 2014 DA - 2014// TI - From ‘trust us’ to participatory governance: deliberative publics and science policy JO - Public Underst Sci VL - 23 UR - https://doi.org/10.1177/0963662512472160 DO - 10.1177/0963662512472160 ID - Burgess2014 ER - TY - BOOK AU - Dryzek, J. PY - 2000 DA - 2000// TI - Deliberative democracy and beyond PB - Oxford University Press CY - Oxford ID - Dryzek2000 ER - TY - STD TI - Centre for Research Excellence in Emerging Infectious Disease (CREID). Community perspectives on the benefits and risks of technologically enhanced communicable disease surveillance systems 2019 [Available from: https://wp.me/P5i0Et-4o. UR - https://wp.me/P5i0Et-4o ID - ref66 ER - TY - STD TI - Thomas R, Sims R, Degeling C, Street JM, Carter SM, Rychetnik L, et al. CJCheck Stage 1: development and testing of a checklist for reporting community juries – Delphi process and analysis of studies published in 1996–2015. Health Expectations. 2016. https://doi.org/10.1111/hex.12493. ID - ref67 ER - TY - JOUR AU - Pavone, V. AU - Esposti, S. D. PY - 2012 DA - 2012// TI - Public assessment of new surveillance-oriented security technologies: beyond the trade-off between privacy and security JO - Public Underst Sci VL - 21 UR - https://doi.org/10.1177/0963662510376886 DO - 10.1177/0963662510376886 ID - Pavone2012 ER - TY - JOUR AU - Parkin, L. AU - Paul, C. PY - 2011 DA - 2011// TI - Public good, personal privacy: a citizens' deliberation about using medical information for pharmacoepidemiological research JO - J Epidemiol Community Health VL - 65 UR - https://doi.org/10.1136/jech.2009.097436 DO - 10.1136/jech.2009.097436 ID - Parkin2011 ER - TY - STD TI - Schippers B. Facial recognition: ten reasons you should be worried about the technology. The Conversation [Internet]. 2019. Available from: https://theconversation.com/facial-recognition-ten-reasons-you-should-be-worried-about-the-technology-122137. UR - https://theconversation.com/facial-recognition-ten-reasons-you-should-be-worried-about-the-technology-122137 ID - ref70 ER - TY - STD TI - Toscano J. Google Has My Dead Grandpa’s Data And He Never Used The Internet. Forbes Now [Internet]. 2019. Available from: https://www.forbes.com/sites/joetoscano1/2019/09/03/google-has-my-dead-grandpas-data-and-he-never-used-the-internet/#73ea207b2b0c.. UR - https://www.forbes.com/sites/joetoscano1/2019/09/03/google-has-my-dead-grandpas-data-and-he-never-used-the-internet/#73ea207b2b0c ID - ref71 ER - TY - STD TI - Ipsos MORI. The One-Way Mirror: Public attitudes to commercial access to health data https://wellcome.ac.uk/sites/default/files/public-attitudes-to-commercial-access-to-health-data-wellcome-mar16.pdf Wellcome Trust; 2016. UR - https://wellcome.ac.uk/sites/default/files/public-attitudes-to-commercial-access-to-health-data-wellcome-mar16.pdf ID - ref72 ER - TY - JOUR AU - Damschroder, L. J. AU - Pritts, J. L. AU - Neblo, M. A. AU - Kalarickal, R. J. AU - Creswell, J. W. AU - Hayward, R. A. PY - 2007 DA - 2007// TI - Patients, privacy and trust: patients’ willingness to allow researchers to access their medical records JO - Soc Sci Med VL - 64 UR - https://doi.org/10.1016/j.socscimed.2006.08.045 DO - 10.1016/j.socscimed.2006.08.045 ID - Damschroder2007 ER - TY - JOUR AU - Willison, D. J. AU - Schwartz, L. AU - Abelson, J. AU - Charles, C. AU - Swinton, M. AU - Northrup, D. PY - 2007 DA - 2007// TI - Alternatives to project-specific consent for access to personal information for Health Research: what is the opinion of the Canadian public? JO - J Am Med Inform Assoc VL - 14 UR - https://doi.org/10.1197/jamia.M2457 DO - 10.1197/jamia.M2457 ID - Willison2007 ER - TY - JOUR AU - O’Doherty, K. C. AU - Burgess, M. M. AU - Edwards, K. AU - Gallagher, R. P. AU - Hawkins, A. K. AU - Kaye, J. PY - 2011 DA - 2011// TI - From consent to institutions: designing adaptive governance for genomic biobanks JO - Soc Sci Med VL - 73 UR - https://doi.org/10.1016/j.socscimed.2011.05.046 DO - 10.1016/j.socscimed.2011.05.046 ID - O’Doherty2011 ER - TY - JOUR AU - Goodin, R. E. PY - 2017 DA - 2017// TI - The epistemic benefits of deliberative democracy JO - Policy Sci VL - 50 UR - https://doi.org/10.1007/s11077-017-9286-0 DO - 10.1007/s11077-017-9286-0 ID - Goodin2017 ER -