Development and psychometric evaluation of a new tool for measuring the attitudes of patients with progressive neurological diseases to ethical aspects of end-of-life care

Table 2 Exploratory Factor Analysis of Items in Area 1: “Attitudes to end-of-life care”

Rotated Component Matrix^a
Attitudes	Patients			Family members
Attitudes	1	2	α^b α^c	1	2	α^b α^c
Dom 1 – CONTROL OVER END OF LIFE			0.652			0.659
Having medicine available to end one’s life.		0.648	0.537		0.554	0.471
Quality of life is more important than its length.		0.673	0.531		0.497	0.551
Greater fear of helplessness and dependence than of death.		0.752	0.479		0.714	0.500
Having pain killers under control.	0.412	0.476	0.557		0.619	0.552
More open discussions in public about death and dying.	0.340	0.346	0.609		0.309	0.622
Dom 2 – KEEPING PATIENTS ALIVE			0.658			0.695
Discussion with a doctor about prognosis and end of life is too depressing.	0.309		0.671	0.461		0.645
To have the latest treatment available regardless of the side effects.	0.537		0.595	0.624		0.587
The doctor should decide about and manage end-of-life care.	0.427		0.622	0.323	0.316	0.612
To have pain relief treatment at the cost of sedation or confusion.	0.416		0.644	0.529		0.650
When losing the ability to eat, to start tube (enteral) feeding.	0.792		0.652	0.672		0.557
When losing the ability to breathe, to introduce APV.	0.738	−0.397	0.518	0.762		0.528
To be kept alive at any cost.	0.509	− 0.499	0.587	0.638	−0.323	0.596
	26.8%	21.4%		25.4%	21.1%

^aVarimax with Kaiser Normalization, Coefficients below 0.3 suppressed, ^bCronbach’s alpha for domain, ^cCronbach’s alpha if item deleted

ISSN: 1472-6939