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Table 1 List of multiple choice and true/false questions. Correct multiple choice answers are highlighted with an arrow and true/false questions are marked with T (true) or F (false)

From: Informed consent procedure in a double blind randomized anthelminthic trial on Pemba Island, Tanzania: do pamphlet and information session increase caregivers knowledge?

Multiple choice questions

1. What is hookworm?

 

A

A worm that can infect us if we drink dirty water.

B

A worm that can go into our feet if we walk barefoot.

 

C

A worm that can infect us if we eat rotten food.

 

D

A worm that can get to our food through flies.

 

E

Don’t know.

2. Why is hookworm bad for your child?

 

A

My child will get pimples all over the body.

 

B

My child’s urine will become red (blood).

C

My child may not grow well and may have difficulties at school.

 

D

My child will be very hungry all the time.

 

e

Don’t know.

3. Is it possible to treat hookworm?

 

a

No, it is not possible to treat hookworm.

 

b

Yes, it is possible to treat if my child eats a lot of healthy food like veg/fruit.

 

c

Yes, I should take my child to the traditional healer.

d

Yes, my child can receive medication that will kill the hookworm.

 

e

Don’t know.

4. What do we want to do in this study?

 

a

To see if mebendazole kills the worms in my child’s belly because this drug has never been used before.

 

b

To see if mebendazole kills the worms that are in my child’s feet.

 

c

We want to see if mebendazole is better than another drug called albendazole at killing the worms.

d

We want to find out what is the best amount of a mebendazole to kill the hookworm in my child’s belly.

 

e

Don’t know.

5. Who should decide if your child should participate in this study?

 

a

Teacher

b

Mother/father

 

c

Doctors or nurses

 

d

Neighbor or relative

 

e

Don’t know.

6. What happens if your child still has worms after the treatment?

 

a

There is nothing that we can do

 

b

We will give him/her an injection to kill the worms

 

c

Your child should drink a lot of water

d

We will give him/her another pill to kill the worms

 

e

Don’t know.

7. Can your child give up participating during the study?

a

Yes, my child can give up and there is no consequence. He/she will still receive treatment.

 

b

Yes, but my child will not receive treatment.

 

c

No, my child cannot give up if I decide he participates he/she has to stay until the end of the study.

 

d

Only if the doctor and teacher agree that he/she can give up.

 

e

Don’t know.

8. What about payment?

 

a

There are some costs for you: you will have to pay for your child’s treatment.

b

There are no costs for you: the treatment is free and you will get 2$ if you came to the information session.

 

c

You will receive money if your child accepts the treatment

 

d

You will only get money if the treatment kills the worms

 

e

Don’t know.

9. Is the treatment we will give to your child (mebendazole) safe?

 

a

Nothing bad can happen if my child takes the treatment.

 

b

If my child takes the treatment he/she will not be able to walk for a few days.

c

If my child takes the treatment, he/she may feel some things like a belly ache or a headache but nothing very dangerous.

 

d

If my child takes the treatment he will sleep all day.

 

e

Don’t know.

10. Who will be able to see your child’s personal information?

 

a

Neighbors

b

Only study investigators

 

c

Teacher

 

d

Only you

 

e

Don’t know.

True or false questions

11. What does your child need to do if he/she participates in this study? Will he have to …

T

a

Give us several stool samples?

F

b

Pay for the medication to kill the worms (mebendazole)?

T

c

Tell us if he/she is feeling well after the medication?

F

d

Give us a urine sample?

F

e

Only give us one stool sample?

T

f

Give us a small blood sample?

T

g

Accept that a doctor checks his/her health?