Skip to main content

Table 4 Dataset initiatives’ mechanisms related to control over research outputs

From: Donors, authors, and owners: how is genomic citizen science addressing interests in research outputs?

Locus of control

Control domains

Initiative(s)

Participant control

Co-authorship

GTL Studies

Spit for Science

MTHFR Study

 

Patent inventorship

None

Waiver of IP rights

GTL Studies

GenomeConnect (limited)

Waiver of commercialization rights

DNAsimple

Spit for Science

Personal Genome Project

Genos

Altruist Database

DNA.Land

23andMe

GenomeConnect

Genomes Unzipped

 

Initiative control

Patent ownership

23andMe

Disclaimer of patent rights

MyGene2

Disclaimer of profits from participant contributions

Personal Genome Project

Genomes Unzipped

Altruist Database

Patient Insight Network (limited)

MyGene2

DNAsimple (limited)

openSNP

Â