Table 3 Dataset initiatives’ mechanisms related to access to research outputs
Access domains | Initiative(s) | ||
|---|---|---|---|
Participant access to data or analyses | GTL Studies | Open Humans | |
Personal Genome Project | openSNP | ||
Genomes in Need | Genomes Unzipped | ||
Altruist Database | Genevieve | ||
MTHFR Study | GET-Evidence | ||
MyGene2 | Spit for Science (limited) | ||
Participant access to findings and conclusions | Publications | GTL Studies | 23andMe |
Personal Genome Project | Spit for Science | ||
MTHFR Study | GET-Evidence | ||
openSNP | GenomeConnect | ||
Posters | Spit for Science | GenomeConnect | |
Other | Spit for Science (presentations) | 23andMe (identification of articles reporting research that used personal data) | |
Open Humans (policy encouraging open access publication) | |||