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Table 2 Characteristics of dataset initiatives (N = 22)

From: Donors, authors, and owners: how is genomic citizen science addressing interests in research outputs?

Characteristicn (%*)
Primary role
 Research3 (14%)
 Interpretation7 (32%)
 Repository5 (23%)
 Registry2 (9%)
 Matchmaking2 (9%)
 Platform3 (14%)
Date launched
 Before 20118 (36%)
 2011 to 20146 (27%)
 2015 to 20188 (36%)
Primary institutional affiliation
 Commercial6 (27%)
 Academic5 (23%)
 Governmental1 (5%)
 Independent non-profit4 (18%)
 None6 (27%)
Potential financial implications**
 Free to participate16 (73%)
 Cost to participate6 (27%)
 Paid to participate4 (18%)
Potential inputs**
 Biospecimens8 (36%)
 Genetic data22 (100%)
 Survey data14 (64%)
 Social media or fitness data5 (23%)
 Analysis10 (45%)
Potential non-IP returns**
 Raw genetic data5 (23%)
 Ancestry or relative information5 (23%)
 Health, wellness, or trait information16 (73%)
 Scientific training2 (9%)
 Educational credit2 (9%)
 Research matchmaking11 (50%)
 Participant matchmaking13 (59%)
  1. * Due to rounding, percentages in each category may not add to 100%
  2. ** Characteristics in this category are not mutually exclusive