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Table 4 Decision-control preference under conscious and unconscious scenarios

From: Prediction of life-story narrative for end-of-life surrogate’s decision-making is inadequate: a Q-methodology study

 

Total

Husband-wife

Parent-child

Sibling-sibling

Personal

Predicted

Personal

Predicted

Personal

Predicted

Personal

Predicted

Conscious scenario

 -I prefer to make the decisions about which tests or treatments I receive

41 (23)

37 (21)

12 (20)

9 (15)

11 (18)

11 (18)

18 (30)

17 (28)

 -I prefer to make the final decision about which tests or treatments I receive after seriously considering my loved one’s opinions

49 (27)

40 (22)

12 (20)

8 (13)

18 (30)

16 (27)

19 (32)

16 (27)

 -I prefer that my loved one and I share responsibility for deciding which tests or treatments I receive

78 (43)

84 (47)

32 (53)

35 (58)

27 (45)

26 (43)

19 (32)

23 (38)

 -I prefer that my loved ones make the final decision about which tests or treatments I receive after seriously considering my opinion

7 (4)

14 (8)

3 (5)

7 (12)

1 (2)

4 (7)

3 (5)

3 (5)

 -I prefer to leave all decisions about which tests or treatments I receive to my loved ones

5 (3)

5 (3)

1 (2)

1 (2)

3 (5)

3 (5)

1 (2)

1 (2)

Unconscious scenario

 -I prefer that my loved ones tell my doctor which tests or treatments to order for me based on my own personal wishes

24 (13)

26 (14)

9 (15)

9 (15)

7 (12)

6 (10)

8 (13)

11 (18)

 -I prefer that my loved ones tell my doctor which tests or treatments to order for me based on my own personal wishes, after having seriously considered what they think is best

44 (24)

46 (26)

7 (12)

9 (15)

18 (30)

16 (27)

19 (32)

21 (35)

 -I prefer that my loved ones tell my doctor which tests or treatments to order by equally weighing both my personal wishes and what my loved ones think is best

78 (43)

71 (39)

35 (58)

31(52)

18 (30)

21 (35)

25 (42)

19 (32)

 -I prefer that my loved ones tell my doctor which tests or treatments to order for me based on what they think is best, after having seriously considered my own personal wishes

19 (11)

21 (12)

5 (8)

7 (12)

8 (13)

9 (15)

6 (10)

5 (8)

 -I prefer that my loved ones tell my doctor which tests or treatments to order for me based on what my loved ones think is best

15 (8)

16 (9)

4 (7)

4 (7)

9 (15)

8 (13)

2 (3)

4 (7)

  1. Data are number (%) of respondents who selected the option for themselves (personal) or predicted that their participating family member would have selected (predicted). Percentages may not add to 100% due to rounding