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Table 1 Case Chart

From: Shall parent / patient wishes be fulfilled in any case? A series of 32 ethics consultations: from reproductive medicine to neonatology

Fields

No

Ethical focus of presented problem(s)

Wishes of patient / parents

Wishes supported

Reproductive Medicine

R1

Infertile husband, diagnosed with cystic fibrosis, wishing treatment with assisted reproduction

ICSI despite uncertain life expectancy of the father-to-be

Yes

R2

Infertile multimorbid husband with severe Diabetes mellitus Type 2

ICSI despite uncertain life expectancy of the father-to-be

Yes

R3

After termination of pregnancy of healthy twin pregnancy after ICSI using donated semen

Wish for another treatment with ICSI

No

R4

Infertile husband and failed testicular biopsy

Sperm donation of husband’s father

No by EC changed into Yes by head physician.

R5

Infertile husband with osteogenesis imperfecta

ICSI despite possible risk of giving on the disease

Yes

R6

Multimorbid wife with kidney failure and extremely rare blood type

ICSI despite possible deadly complications during pregnancy and delivery

Yes by EC changed into No by head physician.

R7

Wife with multiple sclerosis and unfulfilled desire to have children

ICSI despite progressive disabling sickness

No

R8

Wife with several miscarriages after ICSI and borderline personality disorder which worsened after miscarriage causing conflict with the team

Repetition of ICSI

Yes

Obstetrics

S1

Twin pregnancy with impending delivery, need for lung-maturation-treatment after reproductive treatment abroad

Refusal of lung maturation; only “healthy” children to survive

No

S2

Request for abortion in the 16th week because of gastroschisis

Abortion after 12th week in case of a treatable disease

No

S3

Triplet pregnancy after ICSI and risk for preeclampsia

Selective feticide

Yes

S4

PPROM in 21st week, lack of compliance (fundamental evangelical church)

Refusal of treatment insisting on God’s direct support

No

S5

Healthy twin pregnancy after ICSI and denial of selective feticide

Abortion of both unborn children

No

S6

Diagnosis of trisomy 18 in 25th week

Comfort care and refusal of life-sustaining measurements

Yes

S7

Request for termination of pregnancy in the 14th week because of minor hand malformation, no impact on child’s QoL

Termination of pregnancy after 12th week in case of minor malformation

No

S8

Incompetent patient (low IQ), life-threatening pregnancy

Patient’s father requests abortion

Yes

Patient’s father requests for sterilisation

No

S9

Request for termination of pregnancy in the 21st week by the 15yo pregnant woman

Abortion after 12th week

No

S10

Request for termination of pregnancy in 22nd week because of cleft lip and palate

Abortion after 12th week in case of treatable disease

No

S11.1

Unborn child with a complex of multiple diseases not compatible with life in the 26th week of pregnancy

Carrying out pregnancy but no medical intervention

Yes

S11.2

Unborn child with a complex of multiple diseases not compatible with life in the 33rd week of pregnancy

Giving birth to a living child by caesarean section

Yes

S12

Request for abortion in 22nd week because of distal forearm malformation

Abortion after 12th week in case of treatable disease

No

S13

Single mother with a strict Muslim background requests termination of pregnancy in the 22nd week

Abortion after 12th week in case of psychosocial distress

Yes

S14

Premature rupture of membranes in 20th week of pregnancy

Request for determined advice for further procedure

No

Neonatology

N1

Limitation vs. intensification of treatment in preterm new-born with brain haemorrhage

Drug-addicted mother requests maximum treatment

No

N2

Parents of full term new-born with asphyxia request EC to discuss further treatment limitation

Treatment limitation of life-sustaining measurements incl. Fluid supply

No

N3

Full term new-born with apallic syndrome after intracranial haemorrhage. Planning of further steps

Father requested treatment limitation incl. food & fluid supply referring to outdated guideline

No

N4

Full term new-born with VACTERL association. Planning of further steps

Wish for “perfect child”, vote in favour of surgery

No

N5

Treatment limitation in preterm-born infant with extended brain damage

Limitation of food supply

No

N6

Preterm new-born with trisomy 18 in mosaic. Planning of further steps

Parents (Muslims) designate the child “a gift from God” and wish maximum treatment

No

N7

Treatment limitation in case of severe asphyxia + maternal postpartum death

Widowed father initially requested DNR

No

Neurosurgery

NC1

Pregnant women with intracerebral bleeding in 21st week of pregnancy and unborn child with multiple diseases. Termination vs. continuation of pregnancy regarding prognosis of both mother and child

Continuation of pregnancy

Yes

Family Planning

F1

Patient with severe depression with unfulfilled desire to have children after having two abortions because of her mental condition

Wish for removal of IUD

(Yes)