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Table 4 The main person who decides on research study participation and decision style

From: Parents’ attitudes towards and perceptions of involving minors in medical research from the Japanese perspective

consent age of the child (years) The child Decides
Number (%)
Consensus building
Number (%)
The parents decide
Number (%)
Unknown
Number (%)
Non-life-threatening disease/illness that can be completely cured
 6–10 18 (9.0%) 85 (42.3%) 86 (42.8%) 12 (6.0%)
 11–14 59 (14.1%) 204 (49.6%) 113 (27.5%) 35 (8.5%)
 15–18 103 (19.1%) 245 (45.5%) 117 (21.7%) 73 (13.6%)
Non-life-threatening disease/illness but will leave a disability
 6–10 5 (2.5%) 90 (44.8%) 93 (46.3%) 13 (6.5%)
 11–14 25 (6.1%) 217 (52.8%) 135 (32.8%) 34 (8.3%)
 15–18 56 (10.4%) 288 (53.6%) 122 (22.7%) 72 (13.4%)
Life-threatening serious disease/illness
 6–10 4 (2.0%) 58 (28.9%) 123 (61.3%) 16 (8.0%)
 11–14 9 (2.2%) 194 (44.8%) 172 (41.9%) 46 (11.2%)
 15–18 33 (6.1%) 246 (45.7%) 182 (33.8%) 77 (14.3%)