Table 1 Attitudes of healthy adults and patients against sharing clinical and genomic data including family members
From: Ethical concerns on sharing genomic data including patients’ family members
Which one do you think needs the strongest protection for data sharing? | Healthy adults (%) | Patients (%) | Total general adults (%) |
|---|---|---|---|
Only your clinical data (i.e., name of diagnosed disease, medical history) | 478 (8.9) | 455 (8.3) | 933 (8.6) |
Your clinical data and your genomic data | 555 (10.3) | 672 (12.2) | 1227 (11.3) |
Your clinical data, your genomic data, and your relatives’ clinical and genomic data | 1802 (33.4) | 2479 (45.1) | 4281 (39.3) |
No difference in these three for necessary protection | 1094 (20.3) | 1160 (21.1) | 2254 (20.7) |
I do not know/I cannot answer | 1460 (27.1) | 726 (13.2) | 2186 (20.1) |
Total | 5389 (100) | 5492 (100) | 10,881 (100) |