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Table 1 Attitudes of healthy adults and patients against sharing clinical and genomic data including family members

From: Ethical concerns on sharing genomic data including patients’ family members

Which one do you think needs the strongest protection for data sharing? Healthy adults (%) Patients (%) Total general adults (%)
Only your clinical data (i.e., name of diagnosed disease, medical history) 478 (8.9) 455 (8.3) 933 (8.6)
Your clinical data and your genomic data 555 (10.3) 672 (12.2) 1227 (11.3)
Your clinical data, your genomic data, and your relatives’ clinical and genomic data 1802 (33.4) 2479 (45.1) 4281 (39.3)
No difference in these three for necessary protection 1094 (20.3) 1160 (21.1) 2254 (20.7)
I do not know/I cannot answer 1460 (27.1) 726 (13.2) 2186 (20.1)
Total 5389 (100) 5492 (100) 10,881 (100)