Table 1 Characteristics of the interviewees (n = 22)

Male (n, %)

19 (86%)

Age (median, range)

55 (39–68)

Years of experience with clinical registries (median, range)

14 (1.5–27)

Experience working abroad > 1 year (n, %)

12 (55%)

Number of registries currently involved in (median, range)

2 (1–6)

 First line data collectors (M’)

6

 CRG data center manager (M”)

5

 Initiators/ sponsors (politics, federal administration, patient organisation, quality management) (A)

7

 Reviewers (cantonal ethics committee, clinical ethicist) (R)

4

 Medical doctor

16

 PhD science

5

 Economy

1

 Law & humanities

2

 Nurse

1

  Anaesthetics

1

  Cardiology

1

  Dermatology

1

  General practice

1

  Infectious diseases

1

  Nephrology

1

  Paediatrics

1

  Public Health

2

  Other HC fields

   Data management direction

2

   Quality management

1

   Health administration

3

   Ethics

4

   Health policy

3

 German

17

 French

6

 Italian

2

 Geneva

1

 Lausanne

3

 Fribourg

2

 Bern

4

 Zürich

12

 Public

19

 Private

3