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Table 1 Key themes from the data

From: Ethical implications of digital communication for the patient-clinician relationship: analysis of interviews with clinicians and young adults with long term conditions (the LYNC study)

Key themes

Sub-themes discussed in the interviews

Autonomy and control

• Increasing young person’s control in the management of their condition.

• Paradoxical reduced autonomy of young people and increased dependence on the clinician.

• Opportunity to build a more personal relationship with their clinician more important than increased control.

• Loss of clinician autonomy in relation to the timing and the style of the communication with young people; and control of information passing into the public domain.

Defining the limits of duty of care

• Ambiguity about when the duty of care is established and what is required by that duty.

• Different views and ways of dealing with issues around duty of care amongst clinicians:

• Establishing rules about access and responsiveness of clinicians to digital communication

Communication and trust

• DCC as an enabler of a trusting relationship between young people and their clinicians.

• Importance to young people of face to face consultation for establishing trust.

• Clinician concern regarding completeness of information provided by young people through digital communication.

• Different understandings of confidentiality and privacy amongst young people and their clinicians.