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Table 1 Contacts with medical associations, colleges of physicians and neurology associations

From: The elusive ideal of inclusiveness: lessons from a worldwide survey of neurologists on the ethical issues raised by whole-genome sequencing

MEDICAL ASSOCIATIONS AND COLLEGES OF PHYSICIANS
  # countries/areas listeda # of organizations identifiedb # of countries/areas for which NO relevant organization(s) could be identified Contact and follow-up c
YESd NOe or Lost in follow-upf No answer No contact email or invalid email addressesc # of direct invitations to neurologistsg
North America 3 30 0 1 7 22 0 -
Central America 6 8 1 0 0 8 0 -
South America 10 16 0 0 1 12 3 -
Caribbean 27 17 11 0 1 16 0 -
Europe (except Spain)h 53 65 3 0 7 54 4 -
Eastern Mediterranean 20 28 1 0 0 23 5 -
South-East Asiah 11 10 2 0 0 10 0 -
Western Pacific Regionh 37 21 21 0 0 21 0 -
Africa 47 43 8 2 0 29 12 -
TOTAL (medical associations and colleges) 215 238 47 3 16 195 24 -
NEUROLOGY SOCIETIES AND ASSOCIATIONS
International - 3 - 2 0 1 0 0
North America 3 14 0 4 4 6 0 52
Central America 6 9 0 2 0 7 0 20
South America 10 17 0 8 2 7 0 0
Caribbean 27 2 25 2 0 0 0 97
Europe 54 87 7 29 3 54 1 323
Eastern Mediterranean 20 15 5 2 1 12 0 190
South-East Asia 11 14 4 0 1 11 2 110
Western Pacific region 37 15 25 3 0 12   38
Africa 47 14 35 1 0 12 1 0
TOTAL (neurology organizations) 215 190 101 53 11 122 4 830
  1. aList of countries/geographical areas based on the WHO regions (http://www.who.int/countries/en/). Accessed Summer 2014
  2. bMedical associations were identified through the Geneva Foundation for Medical Education and Research database: http://www.gfmer.ch/Medical_search/Medical_schools.php (Accessed Summer 2014). Search was completed with Google ([NAME OF THE COUNTRY] AND “medical association”] OR [NAME OF THE COUNTRY] AND “physician” and “college”. Neurology associations were identified through the World Federation of Neurology database at http://www.wfneurology.org/member-societies (Accessed Summer 2014) and the list of all the members of the European Academy of Neurology provided at https://www.ean.org/National-Neurological-Societies.2672.0.html (Accessed Summer 2014). Search was completed on Google with: [NAME OF THE COUNTRY] AND “neurology” (in Spanish, Portuguese, French or English). Neurosciences/neurosurgery organizations were excluded. Numbers include regional associations
  3. cWe sent personalized emails and one reminder using email address(es) provided on the websites mentioned in footnote (b) above. For medical associations: the sending of requests and reminders was interrupted during the process, given the very low response rate. For neurology organizations, in case of no answer or invalid email addresses, we consulted the neurology associations’ websites, Google and PubMed to identify names and email addresses of board members (President, Vice-president and Secretary). New personalized emails were sent instead of a reminder
  4. d Includes a few neurology associations that provided the complete list of their members’ emails
  5. eIncludes associations that refused to disseminate our invitation but forwarded our request or referred us to another association
  6. fOrganizations that gave a positive answer but 1) did not seem to proceed and could not be reached again; 2) required payment to disseminate our invitation and/or 3) would only communicate postal addresses of members
  7. g When the email addresses of neurology associations boards members (other than President/Vice-President/Secretary) were provided on websites, we sent a direct survey invitation to these members
  8. h Two medical associations were identified in Spain, but they were not contacted as the very low response rate had us interrupt this means of recruitment. Requests and reminders were likewise stopped for medical associations in South-East Asia and Western Pacific Region