TY - JOUR PY - 2008 DA - 2008// TI - A global network for investigating the genomic epidemiology of malaria JO - Nature VL - 456 UR - https://doi.org/10.1038/nature07632 DO - 10.1038/nature07632 ID - ref1 ER - TY - JOUR PY - 2010 DA - 2010// TI - A map of human genome variation from population-scale sequencing JO - Nature VL - 467 UR - https://doi.org/10.1038/nature09534 DO - 10.1038/nature09534 ID - ref2 ER - TY - JOUR PY - 2014 DA - 2014// TI - Research capacity. Enabling the genomic revolution in Africa JO - Science VL - 344 UR - https://doi.org/10.1126/science.1251546 DO - 10.1126/science.1251546 ID - ref3 ER - TY - STD TI - De Vries J, Bull S, Doumbo OK, Ibrahim M, Mercerau-Puijalon O, Kwiatkowski DP et al. Ethical issues in human genomics research in developing countries. BMC Med Ethics. 2011;12(5). doi:10.1186/1472-6939-12-5. ID - ref4 ER - TY - JOUR AU - Wright, G. AU - Koornhof, P. AU - Adeyemo, A. AU - Tiffin, N. PY - 2013 DA - 2013// TI - Ethical and legal implications of whole genome and whole exome sequencing in African populations JO - BMC Med Ethics VL - 14 UR - https://doi.org/10.1186/1472-6939-14-21 DO - 10.1186/1472-6939-14-21 ID - Wright2013 ER - TY - JOUR AU - Grady, C. AU - Eckstein, L. AU - Berkman, B. E. AU - Brock, D. AU - Cook-Deegan, R. AU - Fullerton, S. M. PY - 2015 DA - 2015// TI - Broad consent for research with biological samples: workshop conclusions JO - AJOB VL - 15 ID - Grady2015 ER - TY - JOUR AU - Tindana, P. AU - Vries, J. PY - 2016 DA - 2016// TI - Broad consent for genomic research and biobanking: perspectives from low- and middle-income countries JO - Annu Rev Genomics Hum Genet VL - 17 UR - https://doi.org/10.1146/annurev-genom-083115-022456 DO - 10.1146/annurev-genom-083115-022456 ID - Tindana2016 ER - TY - JOUR AU - Parker, M. AU - Bull, S. J. AU - Vries, J. AU - Agbenyega, T. AU - Doumbo, O. K. AU - Kwiatkowski, D. P. PY - 2009 DA - 2009// TI - Ethical data release in genome-wide association studies in developing countries JO - PLoS Med VL - 6 UR - https://doi.org/10.1371/journal.pmed.1000143 DO - 10.1371/journal.pmed.1000143 ID - Parker2009 ER - TY - BOOK AU - White, L. PY - 2000 DA - 2000// TI - Speaking with Vampires: Rumor and History in Colonial Africa PB - University of California Press CY - Berkeley and Los Angelos ID - White2000 ER - TY - BOOK AU - Giles-Vernick, T. AU - Webb, J. L. A. PY - 2013 DA - 2013// TI - Global Health in Africa. Historical perspectives on disease control PB - Ohio University Press CY - Athens ID - Giles-Vernick2013 ER - TY - JOUR AU - Rinsum, H. AU - Tangwa, G. B. PY - 2004 DA - 2004// TI - Colony of genes, genes of the colony: diversity, difference and divide JO - Third World Quarterly VL - 25 UR - https://doi.org/10.1080/0143659042000256878 DO - 10.1080/0143659042000256878 ID - Rinsum2004 ER - TY - JOUR AU - Chu, K. M. AU - Jayaraman, S. AU - Kyamanywa, P. AU - Ntakiyiruta, G. PY - 2014 DA - 2014// TI - Building research capacity in Africa: equity and global health collaborations JO - PLoS Med VL - 11 UR - https://doi.org/10.1371/journal.pmed.1001612 DO - 10.1371/journal.pmed.1001612 ID - Chu2014 ER - TY - STD TI - Barchi F, Matlhagela K, Jones NJ, Kebaabetswe PM, Merz JF. “The keeping is the problem”: A qualitative study of IRB-member perspectives in Botswana on the collection, use, and storage of human biological samples for research. BMC Med Ethics. 2015;16(54). doi:10.1186/s12910-015-0047-3. ID - ref13 ER - TY - JOUR AU - Vries, J. AU - Abayomi, A. AU - Littler, K. AU - Madden, E. AU - McCurdy, S. AU - Ouwe Missi Oukem-Boyer, O. PY - 2015 DA - 2015// TI - Addressing ethical issues in H3Africa research - the views of research ethics committee members. The JO - HUGO J VL - 9 UR - https://doi.org/10.1186/s11568-015-0006-6 DO - 10.1186/s11568-015-0006-6 ID - Vries2015 ER - TY - JOUR AU - Vries, J. AU - Littler, K. AU - Matimba, A. AU - McCurdy, S. AU - Ouwe Missi Oukem-Boyer, O. AU - Seeley, J. PY - 2016 DA - 2016// TI - Evolving perspectives on broad consent for genomics research and biobanking in Africa. Report of the Second H3Africa Ethics Consultation Meeting, 11th May 2015 JO - Glob Health Epidemiol Genomics VL - 1 ID - Vries2016 ER - TY - JOUR AU - Staunton, C. AU - Moodley, K. PY - 2013 DA - 2013// TI - Challenges in biobank governance in Sub-Saharan Africa JO - BMC Med Ethics VL - 14 UR - https://doi.org/10.1186/1472-6939-14-35 DO - 10.1186/1472-6939-14-35 ID - Staunton2013 ER - TY - JOUR AU - Sathar, M. A. AU - Dhai, A. PY - 2012 DA - 2012// TI - Laws, regulations and guidelines of developed countries, developing countries in Africa, and BRICS regions pertaining to the use of human biological material (HBM) in research JO - S Afr J Bioethics and Law VL - 5 ID - Sathar2012 ER - TY - JOUR AU - Nienaber, A. PY - 2011 DA - 2011// TI - Consent to and authorisation of the export and use of human biological specimens for future research - perspectives from three African countries JO - Comparative and International Law Journal of Southern Africa VL - 44 ID - Nienaber2011 ER - TY - JOUR AU - Chanda-Kapata, P. AU - Kapata, N. AU - Moraes, A. AU - Chongwe, G. AU - Munthali, J. PY - 2015 DA - 2015// TI - Genomic research in Zambia: confronting the ethics, policy and regulatory frontiers in the 21st Century JO - Health Res Policy Syst VL - 13 UR - https://doi.org/10.1186/s12961-015-0053-4 DO - 10.1186/s12961-015-0053-4 ID - Chanda-Kapata2015 ER - TY - JOUR AU - Andanda, P. AU - Govender, S. PY - 2015 DA - 2015// TI - Regulation of biobanks in South Africa JO - J Law Med Ethics VL - 43 ID - Andanda2015 ER - TY - JOUR AU - Nnamuchi, O. PY - 2015 DA - 2015// TI - Biobank/genomic research in nigeria: examining relevant privacy and confidentiality frameworks JO - J Law Med Ethics VL - 43 ID - Nnamuchi2015 ER - TY - STD TI - The UNESCO Global Ethics Observatory (GEObs). http://www.unesco.org/new/en/social-and-human-sciences/themes/global-ethics-observatory/. Accessed 01/09/2016 2016. UR - http://www.unesco.org/new/en/social-and-human-sciences/themes/global-ethics-observatory/ ID - ref22 ER - TY - STD TI - Health Research Web (HRWeb). https://www.healthresearchweb.org/. Accessed 1/09/2016 2016. UR - https://www.healthresearchweb.org/ ID - ref23 ER - TY - STD TI - 2015 International Compilation of man Subjects Standards http://www.hhs.gov/ohrp/international/index.html. Accessed 01/09/2016 2016. UR - http://www.hhs.gov/ohrp/international/index.html ID - ref24 ER - TY - STD TI - Training And Resources In Research Ethics Evaluation (TRREE) http://elearning.trree.org/. Accessed 01/09/2016 2016. UR - http://elearning.trree.org/ ID - ref25 ER - TY - STD TI - ClinRegs database. https://clinregs.niaid.nih.gov/about.php. Accessed 01/09/2016 2016. UR - https://clinregs.niaid.nih.gov/about.php ID - ref26 ER - TY - STD TI - NVivo qualitative data analysis Software; QSR International Pty Ltd. Version 10. 2012. ID - ref27 ER - TY - JOUR AU - Jao, I. AU - Kombe, F. AU - Mwalukore, S. AU - Bull, S. AU - Parker, M. AU - Kamuya, D. PY - 2015 DA - 2015// TI - Involving research stakeholders in developing policy on sharing public health research data in Kenya: Views on fair process for informed consent, access oversight and community engagement JO - J Empir Res Hum Res Ethics VL - 10 UR - https://doi.org/10.1177/1556264615592385 DO - 10.1177/1556264615592385 ID - Jao2015 ER - TY - JOUR AU - Silaigwana, B. AU - Wassenaar, D. PY - 2015 DA - 2015// TI - Biomedical Research Ethics Committees in Sub-Saharan Africa JO - Journal of Empirical Research on Human Research Ethics VL - 10 UR - https://doi.org/10.1177/1556264615575511 DO - 10.1177/1556264615575511 ID - Silaigwana2015 ER - TY - JOUR AU - Ramsay, M. AU - Vries, J. AU - Soodyall, H. AU - Norris, S. AU - Sankoh, O. PY - 2014 DA - 2014// TI - Ethical issues in genomic research on the African continent: experiences and challenges to ethics review committees JO - Human Genomics VL - 8 UR - https://doi.org/10.1186/s40246-014-0015-x DO - 10.1186/s40246-014-0015-x ID - Ramsay2014 ER -