|Inclusion Criteria||Exclusion Criteria|
All studies based on primary evidence.|
All studies reporting qualitative research relevant to the phenomenon  including, but not limited to: focus groups, in-depth interviews, case studies, vignettes, citizens’ juries, ethnographic observation, field notes.
Mixed methods studies with a qualitative component that applied qualitative methods to collect and synthesise the research were included if the findings were presented separately from the quantitative data.
All studies that included first-order constructs directly reporting participants’ responses, such as quotations .
All qualitative studies that provided exploratory, descriptive and/or explanatory findings .
All studies based on secondary evidence.|
All studies that were solely based on quantitative research.
All studies that did not include first-order constructs directly reporting participants’ responses, such as quotations .
All studies researching public (including patient/lay) perspectives.|
Studies involving public and expert opinions were included if public and expert responses were reported separately.
|All studies that did not report public perspectives.|
|Research Topic||All studies that discussed the sharing and linkage of data in research.||All studies that did not discuss the sharing and linkage of data in research.|