Table 2 Approaches to disseminate medically important genetic research results

Option A: In the event of a medically important finding when conducting exploratory genetic research, contact participants and seek consent to collect a second sample for the purpose of a diagnostic confirmatory test.

Option B: Conduct all aspects of genetic research in an accredited environment.

Option C: Communicate medically relevant genetic research results to study participants who opt to receive their individual genetic research results, via clinical investigator and after appropriate genetic counselling. Advise study participants that they would need to seek a diagnostic confirmatory test.