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Table 1 Section of chart relating to the role of ethics committees

From: Young people’s views about the purpose and composition of research ethics committees: findings from the PEARL qualitative study

ID

Text

Code

1

I think it’s very important that they [researchers] have like a standards and stuff and I mean their morals I guess, if they’re, they’re important but as long as they’ve got that, a standard, and there’s somebody checking that they keep to that standard, like um a sort of separate body, you know, if that makes sense? A sort of um governing body, that’s it. That makes sure that they keep to those standards and that sort of, you know, ethics code, I guess. … Um make sure things are being used in the right way, make sure things you know are ethically used … how important is the research … [if] other people’s information needs to be used, whether it does need to be used, whether there’s another way of doing it … whether somebody could be perhaps at risk or something if they do use the information and stuff like that.

Standards

Morals

Separate body

Right way

Importance

Purpose

Risk

2

Making sure obviously that you’ve got a fair sample, of a fair, um that every group, every, all types of people are represented within the study

Fair sample

Representative

3

Um it’s probably a good thing, check everyone’s doing everything right … maybe what kind of records they’re looking at. Um obviously they’re going to be quite personal things if it’s stuff like medicals stuff, um but I don’t know. Maybe checking that people have given their consent and that all, that the organis- the research organisation has tried to get that consent, that kind of thing.

Right way

Type of records

Personal

Consent

  1. Rows and columns continued to include all participants (n = 48)