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Table 2 The types of information participants would like to receive from doctors and researchers, the amount of information they currently receive and overall satisfaction with communication (n = 40)

From: Using digital technologies to engage with medical research: views of myotonic dystrophy patients in Japan

 

Receive information

Communication with doctor

All or some

Little or none

p-value

Satisfied

Dissatisfied

p-value

n (%)

n (%)

n (%)

n (%)

Types of information

Disease (general)

8 (62)

5 (38)

0.390

12 (92)

1 (8)

0.058

Symptoms

8 (42)

11 (58)

 

14 (74)

5 (26)

 

Treatments

9 (41)

13 (59)

 

16 (76)

5 (24)

 

Prognosis

7 (28)

18 (72)

 

17 (74)

6 (26)

 

Other patients

6 (46)

7 (54)

 

11 (85)

2 (15)

 

Medical research (findings)

11 (35)

20 (65)

 

19 (68)

9 (32)

 

Medical research (participating)

10 (43)

13 (57)

 

13 (62)

8 (38)